I am 58 years old, worked since the age of 14, but have run through the little savings I had to pay for doctors, tests, medicines, etc. I had no idea of this disease and the havoc it wreaks on your body. I was extremely fatigued and finally after two years of complaints to my doctor a blood test was ordered, but it is too late. I can't be treated for the Hep C until I receive a new liver. A new liver is $200K+, not to mention medicine, hospital stay, anti rejection drugs and this is if I even manage to receive a matching donor in time. The test they go by is called a MELD score, in February I was at 15, going back to hepatologist in late June and they expect me to be up to around 20 since I already am decompensated (my liver no longer regenerates, it's dead), cirrhosis Stage 4/Grade 4 the end of the line so to speak. If I'm lucky enough to receive a new liver I will then have to go through the Hep C treatment regiment, another $50K minimum. I am starting slow in requesting funds. I have no one to help me with these expenses and depend on the help of people I knew at work and my 20-something kids who basically make minimum wage - even with the college degree. So, in desperation I am starting this fundraiser hoping some of you will find it in your hearts to help with my expenses.
I make payments on a small home, but it's mine right now and would like to stay here no matter what the outcome. I may not be able to find a donor and my chances of survival after two years with decompensation is not good, 50-50 if I can keep paying for my medicine, Xifiaxin and Lactulose.
I have always worked hard, usually two jobs, now I can barely get out of bed and do anything. I can't drive, can't even follow simple directions very well, short attention span. I have hepatic encephalopathy - brain confusion, a dream like state where I fall, sometimes I don't know where I am or what I'm doing. Very frustrating. Other times, I'm OK, but the fatigue is always present.
This is a very difficult disease. To think I've lived for nearly 38 years with it festering inside me is unbelievable, but it finally caught up to me with a vengeance when I went into a coma while driving and wrecked my car.
As stated, I don't have family other than my children, depending on the goodness of people to help me with this. I need my medicine and the ability to have my daughter (my caretaker) to take me to appointments, administer my medicine and write this text. The only good thing to come out of this so far is I've lost a lot of weight!
I will send you info if required, I am not trying to get anything over on anyone. I truly need help. This is the lowest I've ever been in my life, always able to do something to make money, but now this is just not possible. We are going through the Social Security disability process right now, the wheels of the government move slowly. I won't even be able to get medicare for another year even after approval.
I am hoping you read this and decide to help me in my quest to stay on the transplant list at KU Med, help me with my medical expenses. It's a lot to ask, but I do want to live. I have many years of useful life left and I do not want to die at this age.
Please help today and donate to my fundraiser. I will keep you updated on all my medical visits and conditions. Here's a link to some information on my disease, http://www.eperc.mcw.edu/EPERC/FastFactsIndex/ff_188.htm
Thanks for your help in advance.