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Kyah's Heart Fund

$5120raised of $15000 goal
34%

Organizer: Beneficiary: Danielle DeSimone

Kyah DeSimone is a 13-year-old girl who suddenly went into heart failure this past Columbus Day weekend without any warning and has been hospitalized at Children's Hospital Boston ever...

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Kyah DeSimone is a 13-year-old girl who suddenly went into heart failure this past Columbus Day weekend without any warning and has been hospitalized at Children's Hospital Boston ever since. She has a condition called Dialated Cardiomyopathy and has been approved for a heart transplant. Additionally, she recently learned that she has a rare, restrictive lung disease on top of her heart disease, which might also require a lung transplant.

Four weeks ago, the doctors implanted a special mechanical heart as a bridge to transplantation because her heart stopped beating on its own. If they hadn't operated on Monday, November 12th, she would have died. The Doctors were amazed that Kyah managed not only to make it through the weekend, but also that she was able to receive the anesthesia without suffering a heart attack on the table. What should have been an 8-10 hour surgery took only 3 hours. It was truly a miracle! 

Her mom is a single mother of two and has had to quit her job, as well as withdraw from nursing school, where she would have been graduating in May. Kyah's 6-year-old brother has also had numerous medical problems from birth and was hospitalized for an entire year after he was born. He too has been in and out of the hospital since then, but now that he is a little older and a lot healthier, Danielle thought it was all behind them until her oldest daughter was diagnosed with this serious illness.

They are currently living on Cape Cod and she travels back and forth between children, as she is trying to maintain normalcy for her son who is in the 1st grade.

As of now, it is unclear how much longer Kyah will be in the hospital, but once she does go home, things will have to change dramatically. Due to the sensitivity of her lungs and heart, Danielle will have to maintain an extremely clean environment. It will be very costly to purchase the equipment needed, pay for the electricity to keep them running day and night, as well as purchase the special cleaning products she will need to use. They will also have to continue commuting back and forth to Children's for multiple follow-up appointments. 

We are asking for people to donate to this family in GREAT need due to all the expenses of gas, food, household bills, parking etc.
Thank you and God bless!!!
Contact the Organizer

Updates

05/09/2013
by
Good Afternoon,

Jus another quick update...On April 22nd (Kyahs 14th Birthday) she was able to get discharged from hospital with an escort by the Yarmouth Police Department, it was the best an amazing b-day present anyone could ask for!!! There was a small group of friends and family waiting for her outside to welcome her home and we all enjoyed eating chinese food and a delicious Cheesecake from Cheesecake factory generously given to us by Brenda from Prova restraunt.
Thank you everyone for your support and prayers she will be continually going for check ups about 2xs a week and biopsies a couple times a month and so far she has had GREAT reports on all her tests..Thank God!!!

04/08/2013
by
Hello again, 
As most of you know Kyah received her NEW Heart on Easter weekend (March 30th)...She is doing an amazing job recovering so quickly but w/ tht said she is also having sum very minor setbacks so please keep her in prayer that she will push thru these little bumps in the road!!!!

02/26/2013
by


02/20/2013
by
Hello everyone,

I have to appologize for taking so long to update on Kyah's progress, it has been a long and crazy rollercoaster ride and things are finally slowing down just a bit!!!
Kyah was discharged from the hospital as of Jan. 11th and has been home ever since. She is doing very well physically and continuing to gain her weight back.  She is very much loving being home w/ her family and having her friends around. We do have appt's at CHB 2-3 xs a week and have to check in w/ Doctors everyday. She was also provided w/ nursing care daily due to the fact she can not be left alone because of her Heart ware machine and needs constant assessments. Her Doctors now feel Kyah is ready to start going back to school a couple days out of the week so last week they came to her school to teach the staff and some of her classmates about Kyahs condition and the heart pump she has to have until transplant. They also brought along the CHB camera crew to film her back in school and also interviewed us at home to eventually put her story on CHB's website and also ABC news online. Once I have those links I will post them for everyone to see!!!

Thank you for your continued prayers and support for our family..God bless!!!

12/16/2012
by
Thank You EVERYONE for your GENEROUS donations thus far...Its amazing how quickly people have responded!!! Kyah has currently been put back in ICU for the night in hopes to return to the floor tomorrow and my son has been confirmed to have the Flu but is stable at home being cared for between my mom and aunt (Thank GOD for them)....We are wishing everyone a happy healthy Christmas and News Years...God Bless!!!

Supporters

Jackie Valente
donated$25.00
Friday, May 10, 2013


Jeff Schaffer
donatedHidden Amount
Wednesday, April 24, 2013


Nick and Kim Holley
donatedHidden Amount
Wednesday, April 24, 2013

Danielle, it was so nice to meet you when my son and I visited Boston. Your father has always been a special friend to us. This token is just to let you know that we support you and Kyah in this time as well as honor the caring of the young lady who's heart Kyah now has. I read Kyah's stories after your dad called and told me to search the web. It is amazing what can happen when people use intention to accomplish good.


Anonymous
donated$30.00
Tuesday, April 23, 2013


Jeffrey Kosmyna
donated$250.00
Thursday, April 04, 2013

Luv u


Alice
donated$10.00
Wednesday, April 03, 2013

Good luck!


Anonymous
donated$10.00
Thursday, March 07, 2013

A small donation but appreciated I am sure. Get well soon!


T. Hedrich
donatedHidden Amount
Saturday, March 02, 2013


Anonymous
donatedHidden Amount
Wednesday, January 23, 2013


Anonymous
donated$20.00
Tuesday, January 22, 2013


Martha S. Rygh (Marti)
donated$100.00
Tuesday, January 15, 2013

I hope you get a heart match soon and have a successful transplant. My thoughts are with you all! Best wishes, Marti


Anonymous
donatedHidden Amount
Friday, January 11, 2013

. Blessings to you and your family . Live and stay strong. God bless you


Jason, Laurie & Sofia Siciliano
donated$50.00
Monday, January 07, 2013


Anonymous
donatedHidden Amount
Saturday, January 05, 2013

Sending positive thoughts and prayers, with lots oh healing love and support. Stay strong Kyah!


Mike Redfield
donated$25.00
Sunday, December 23, 2012

Merry Christmas to the DeSimone's and wishing you a joyous and healthy New Year!! Love, Mike


Mandy Bickmore
donatedHidden Amount
Friday, December 21, 2012


Anonymous
donated$200.00
Friday, December 21, 2012


John Carr
donatedHidden Amount
Thursday, December 20, 2012


Jetdell and Benjamin Lo-Pinto
donated$100.00
Thursday, December 20, 2012

Stay strong, young and invicble!


Trishtifer
donated$200.00
Thursday, December 20, 2012

Not as much as I wish I could give but along with this donation are many prayers for all invovled! Merry Christmas!!!


Fred and Marlene Clapp
donatedHidden Amount
Thursday, December 20, 2012


Gary Godinho
donatedHidden Amount
Thursday, December 20, 2012


Julie, Derrick, Malcom & Marcus Evans
donated$25.00
Wednesday, December 19, 2012

Sending prayers up to send blessings down. May God cover and keep Miss Kyah healthy and safe, in Jesus' name, Amen!


Anonymous
donatedHidden Amount
Wednesday, December 19, 2012


Glandorf Family
donated$500.00
Wednesday, December 19, 2012


Veronica O'Quinn
donated$50.00
Tuesday, December 18, 2012


Kris and Catherine Williams
donated$50.00
Tuesday, December 18, 2012

Sending Love and Prayers.


Leilani and the Boys
donated$50.00
Tuesday, December 18, 2012


Steve and Elizabeth Platka
donatedHidden Amount
Tuesday, December 18, 2012


Ryan, Jess, Samantha & Brendan Kane
donatedHidden Amount
Monday, December 17, 2012

Your family is in our prayers! We hope this helps in some small way!!


Manny and Lee Lopes and boys
donatedHidden Amount
Monday, December 17, 2012

Sending our blessings, thoughts and prayers. Love


Sarah Cusimano
donated$100.00
Monday, December 17, 2012


Stacey DaSilva
donatedHidden Amount
Monday, December 17, 2012

Hi Danielle, I'm so sorry your daughter is sick. I'm praying for her, for you, and for the rest of your family. I hope this small donation helps. If I had more to give, I would. I pray for strength, healing, comfort, and peace for all of you. God Bless, Stacey (Melissa's Neighbor)


Anonymous
donatedHidden Amount
Monday, December 17, 2012


Gabe and Mona
donated$100.00
Sunday, December 16, 2012


Dan DeCosta
donated$25.00
Sunday, December 16, 2012

Hope this helps


Amy Chamberlin
donated$25.00
Sunday, December 16, 2012


Lori Desmond
donated$25.00
Sunday, December 16, 2012

I offer my thoughts, prayers and well wishes.


Courtney Lawson
donated$10.00
Sunday, December 16, 2012

Prayers and happy thoughts to Kyah and your family!


sheila chiaradonna
donated$25.00
Sunday, December 16, 2012


Leo&GizelleMonteiro
donated$100.00
Sunday, December 16, 2012


Anthony Iantosca
donated$25.00
Sunday, December 16, 2012


Joel & Paula
donated$100.00
Sunday, December 16, 2012

Mona and Gabe are good friends of ours. We hope this will help. God Bless you and your Family and may He help guide you through these trying times.


The Kruse Family
donated$50.00
Sunday, December 16, 2012


Joseph Landau
donated$25.00
Sunday, December 16, 2012


David & Tara Leary
donated$100.00
Sunday, December 16, 2012

Sending all our love ... xo


Gabe and Mona's MATCHING GIFT
donated$500.00
Sunday, December 16, 2012

Thanks to all of our friends that stepped up to the challenge. We can't thank all of you enough to helping to get this fundraiser started with a bang! God Bless! Spread the word!


Matt, Laura, Kathryn & Avery
donatedHidden Amount
Sunday, December 16, 2012


Mimmo & Nina piazza
donated$50.00
Sunday, December 16, 2012

Our thoughts and prayers are with you. We wish you a speedy recovery. God bless. xoxo


Vanessa McCorkle
donatedHidden Amount
Sunday, December 16, 2012

God bless her!!! Stay strong and keep fighting!!!


Eurico Gomes
donated$100.00
Sunday, December 16, 2012


Monica Kicklighter
donated$100.00
Saturday, December 15, 2012

Oh my god girl....wow, what an amazing mom!!! Hang tough...and I'm sending you and your family all of the positive vibes that I can.

Comments

Louise Dinsmore
Dear Family, I read your story. Please have the mom apply for financial assistance through our non profit organization, Gabrielle Dinsmore Heart & Hope Fund. If the family is a resident of RI, CT and MA I'm sure we could help. WWW.heartandhopefund.com. Sincerely, Louise Dinsmore President Gabrielle Dinsmore Heart & Hope Fund LDinsmore16@yahoo.com
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