Jason's Battle

$25,000raised of $100,000 goal
25%

Organizer: Joyce Ruisi Chmel Beneficiary: Jason Chmel

This fundraiser is closed

Jason's Story:

 

            Last summer of 2012, Jason (age41) his wife Marissa and their two children Emilio and Marcello were traveling every other week to Western Pennsylvania to visit his father who was battling cancer.  During their last visit in late August, Jason had a seizure and was rushed to the hospital.  The doctor ordered for an MRI and found out it was a tumor in the right frontal lobe.   A few days later, Jason and his family returned home and went immediately to see a wonderful neurosurgeon in Philadelphia.  The doctor looked at the scans and determined that Jason would need a craniotomy to remove the tumor the very next morning.  Jason and his wife Marissa were devastated by the news.  They had no time to mentally and emotionally prepare for what was to come next. 

                A few days after the operation while recovering in the hospital, Jason received a phone call from his sister saying that their beloved father had lost his battle to cancer.  Saying Jason was upset because he could not attend his father’s funeral would be an understatement.    A week later, Jason was diagnosed with Glioblastoma Multiform (GBM).  It is an aggressive cancer that attacks the brain and spinal cord.  There is no cure for this cancer and he would be considered lucky if he survives five years. 

                A month later, Jason had started chemo and radiation, but a few days into it, Jason started to behave differently.  Jason was taken back to the hospital where they did another MRI.  The scans showed the tumor came back with vengeance in the same location.  Once again, the surgeon performed a second craniotomy to remove the tumor.  This time the surgeon was able to do a total resection. In some ways we felt as though Jason’s father was there with him. GBM is compared to a weed, just when you think you have it all out, there are more cells hiding in the brain and you never know when it will return. 

                Two weeks after surgery Jason was finally able to go through six weeks of chemo and radiation.    In January 2013, Jason had a follow up MRI and was given the bad news that the cells had returned.  Jason was immediately put on a more aggressive type of chemotherapy and the doctors researched a new device that was created for this particular cancer. The doctors contacted the company and Jason is the first in the hospital to try it!  The device stays on Jason’s head day and night to stop the cells from dividing.  So far he is doing very well and he has had a few good MRI scans since wearing the device.

 

Through this whole nightmare, we are amazed at Jason’s constant positive outlook on life.  Though he would love to see his boys grow up, he says if he were to go tomorrow it would be ok, because he has led a great life.  His strength and courage are a true inspiration.

 Update: 07/15/13 Jason's tumor has returned and is scheduled for his third craniontomy Friday July 19, 2013. 

How can you help:

Unfortunately, Jason did not have health insurance when he became ill to cover the outstanding medical expenses. A year prior to his illness, he and his wife were both laid off from their jobs.  Jason was employed for 15 years and his wife for 10 years.  He has had some help with the cost, but not enough.   We need your help raising funds for Jason’s medical bills and other future expenses, so he can have one less burden on his shoulders.

Please post, send to your family and friends, and share liberally.  We appreciate any support that you can provide.  And please keep Jason in your prayers.

Deepest Thanks

P.S. If you are having trouble with sending a donation through this website, you can send a donation to; Marissa Chmel - PO Box 123 Mechanicsville, Pa 18934-0123

 

 

 

Updates

Updates

01/07/2014
by Joyce Ruisi Chmel

 Happy Belated New Years to Everyone.

I am sorry it has been a while since I have posted something, but this has been quite a transition for my children and myself.  I went from being overwhelmed and pulled in every direction to a silent home when the kids are in school.  At first I enjoyed the silence, but that only lasted for two days.  

 We got through the holidays.  With the help of family and my amazing community/friends, the kids and I had an wonderful Christmas. Members from pack 169 put up lights outside our home.  “Santa” and his “elves” came in during the early evening and delivered awesome presents.  I would like to thank all of you who made this Christmas extra special.  There were only tears of joy on Xmas morning.  Marcello was amazed to find a John D. Tractor perfectly assembled (BIG THANK YOU) .  One of my personal favorite gifts was a miniature tree decorated with homemade ornaments made by very special children/angels.  The note from Santa was the topping on the cake.  It is still proudly displayed on our refrigerator.  Our Christmas dinner was perfection.  It was made by one of the parishioners at Our Lady of Guadalupe.  One of the best pork roast of all time.  I can go on and on about food, but I won’t.

I would also like to say thank you for all of you who have been praying for us and sending well wishes.  Your words of kindness mean more to me than you will ever know.  I have saved every card and read them quite often.  . It is my faith in God and the love I feel from all of you that keeps me going.  I miss Jason every day, but I am still at peace knowing he is healed and safe.  And though my emotional wounds are still raw, I am moving forward and loving life more than ever.    I will never let cancer break me. I will not allow it to have that kind of power.   I am fearless and stronger than I have ever been because of you and my faith.

 

Our home is filled with laughter, joy and music again.

I love you,

Marissa

 


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01/07/2014
by Joyce Ruisi Chmel

 Happy Belated New Years to Everyone.

I am sorry it has been a while since I have posted something, but this has been quite a transition for my children and myself.  I went from being overwhelmed and pulled in every direction to a silent home when the kids are in school.  At first I enjoyed the silence, but that only lasted for two days.  

 We got through the holidays.  With the help of family and my amazing community/friends, the kids and I had an wonderful Christmas. Members from pack 169 put up lights outside our home.  “Santa” and his “elves” came in during the early evening and delivered awesome presents.  I would like to thank all of you who made this Christmas extra special.  There were only tears of joy on Xmas morning.  Marcello was amazed to find a John D. Tractor perfectly assembled (BIG THANK YOU) .  One of my personal favorite gifts was a miniature tree decorated with homemade ornaments made by very special children/angels.  The note from Santa was the topping on the cake.  It is still proudly displayed on our refrigerator.  Our Christmas dinner was perfection.  It was made by one of the parishioners at Our Lady of Guadalupe.  One of the best pork roast of all time.  I can go on and on about food, but I won’t.

I would also like to say thank you for all of you who have been praying for us and sending well wishes.  Your words of kindness mean more to me than you will ever know.  I have saved every card and read them quite often.  . It is my faith in God and the love I feel from all of you that keeps me going.  I miss Jason every day, but I am still at peace knowing he is healed and safe.  And though my emotional wounds are still raw, I am moving forward and loving life more than ever.    I will never let cancer break me. I will not allow it to have that kind of power.   I am fearless and stronger than I have ever been because of you and my faith.

 

Our home is filled with laughter, joy and music again.

I love you,

Marissa

 


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12/25/2013
by Joyce Ruisi Chmel

Merry Christmas Everyone!


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12/22/2013
by Joyce Ruisi Chmel

I was never one to really get into the xmas holiday spirit, but I love seeing it through the boys' eyes.  Part of me wishes the Jason that I once knew was here, but I am glad the sick Jason is gone because now he can watch us in heaven.

All of you, my family, friends, church and community have touched me in such away.  I am forever greatly humbled by all of this.  There is so much goodness in this world and I wish others who don't believe could witness this. My faith has been restored because of this whole ordeal. I feel held up by so many arms and wings.  You are what keeps me going.  You are what gives me the strength to move on from this nightmare.  I assure you I will do my best to be the best person/ mother I can be.  I have said it before and I will say it again.  I will not let this dreadful moment define who I am.  I am so ready for the next chapter.  I am strong and fearless.  And after what I went through, I feel like nothing can stop my.

I love seeing my local peeps out and about.  They usually start of by saying, I can't imagine what you went through.  My answer is always,  " you don't want to"

Many horrible events took place between Jason and I, but I need to put that in the pass and begin to heal.

I love all of you and please remember what truly matters this xmas season......
Things break, but love can last an eternity.

Love,Peace,Clarity, and Happiness to you all.

Marissa

MERRY CHRISTMAS
MERRY CHRISTMAS
MERRY CHRISTMAS * INFINITY

 I hope the  PC police don't come after me.... oh well ;)


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12/10/2013
by Joyce Ruisi Chmel
Tonight there is a benefit for the Chmel family this holiday season  at Bobby Simone's on East State Street, Doylestown, Pa.  It will be from 7PM to 10PM.  There will be live music and a cash bar.  A visa gift card or donation is required for entry into this private event.  No donation is too small.

To thank you for your generosity, you will automatically be entered into a raffle** of your choice.

Confirmed raffle participants include:

Bobbie Simone's
Corner Stone
Gerhard's Appliances
Johnson and Johnson
Libra Dance Studio
Maximuck's Farm Market
Pump it Up!
Serenity Spa
South Avenue Sweets
Textbook Goaltending
The Karate School
The Talking Teacup
Zips Dry Cleaner

All proceeds from the event will go directly to supporting the Chmel Family.

**Raffle winners will be notified by telephone.
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12/09/2013
by Joyce Ruisi Chmel
"God our Father, walk through my house & take away all my worries & illness &  please watch over & heal my family & other families too ... amen



The Funeral was this past Saturday and It was beautiful.  It was a cloudy cold day, but just as the service began the church was flooded with beaming light coming from the windows.  The sun was almost blinding and it was shining right on Jason.  I knew he was there with us.... with me.  It was the most beautiful thing to see.  And when the service ended the sun went away.  It was his way of telling us he was there.

I know people  were surprised to see me composed, but as I have said in the past... unless you have walked in my shoes you will never understand the nightmare we were put through.  I have watched Jason suffer for so long, that at the end I begged God to take him  away and make him the once strong young happy man I once knew him to be.  This was not Jason anymore and My grieving started a long time ago. The funeral was not the hardest part for me, because God had answered our prayers. 
The morning after Jason passed I woke up surrounded by my boys in bed.  It felt like a weight had been lifted and my anxiety disappeared. I am sadden beyond comprehension , but Jason and I are no longer in limbo.  We both can move on.  My obsession with counting down... gone.  Time is not the enemy anymore and Jason is no longer suffering.  His suffering was my suffering and now his death is my salvation.

During the service I was looking up at Jesus hanging on the cross , but I was paying more attention to Mary's face.  I saw the horror and helplessness in her face looking up at her son and I finally got it.  I have seen images like this many times, but I never understood the emotion behind her eyes.  To watch someone you love suffer in my opinion is the hardest thing a person could ever endure. 
That is why I was so at peace at church.  God  had finally lifted that heavy burden off of our shoulders.  The hard part was over.  I was ready to celebrate his life.

Thank you to everyone who came out.  I am blessed.  And this is not the last time you have heard from me because I am also blessed with the gift to gab. 

Kids are still doing very well.  Emilio is upset he does not have a dad anymore and has expressed to me that he would like a new one.  It broke my heart, but I had to explain to him the reality of our lives.  I am going to take the next 2 months to focus on them.  I was not able to spend a lot of time with them and they deserve every second. 

Love you all,
Marissa

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12/07/2013
by Joyce Ruisi Chmel

Hi I just wanedt to say thank you for all of your kind words.  I am sorry I can not respond to everyone at this time, but please know I read everything and I am touched. 

The viewing and the funeral BOTH take place at Our Lady of Guadalupe Church.  No traveling is involved between the two events.  Events following  the funeral will be held privately. .


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12/04/2013
by Joyce Ruisi Chmel

A friend recommended a hotel for anyone who is coming from out of town.

Hampton Inn Doylestown
1570 Easton Rd (611N)
Warrington, Pa 18976
215-343-8400

It is about 20 minutes away from the church


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12/04/2013
by Joyce Ruisi Chmel
http://fluehr.com/obituaries/jason-alan-chmel 

Here is all the information for this Saturday.
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12/04/2013
by Joyce Ruisi Chmel
Relatives and friends are invited to attend Jason's viewing Saturday, December 7,2013 from 12:30PM until his Funeral Mass 2:30PM at Our Lady of Guadalupe Church, 5175 Cold Spring Creamery Rd., Doylestown, Pa 18902.  His interment will be held privately.

Obit will be coming out on Thursday.  I will post a link as soon as possible.

In lieu of flowers, the family request contributions in his memory be made to the Jason Chmel Fund.



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12/03/2013
by Joyce Ruisi Chmel
The boys are going great.  Late last night Marcello and I had a talk in my bedroom.  I told him that Daddy went to Heaven up in the sky with the angels.  And now Daddy is an Angel watching over us.

I told Emilio that Heaven needed Daddy.  The Angels took him to see Grandpa.  Now Daddy and Grandpa are together and they are watching over us.  I asked Emilio how he felt and replied good.  I asked why?  He said because daddy is not sick anymore.  He is so smart and so brave.  I wish I could give them back there Daddy but I can't. 

Emilio asked me if I had more time for him now and I said yes.

I love my boys.

I am doing really well.  I am still in shock, but there is a sense of calm in our home.  There is a weight that has been lifted and I am at peace with Jason dying.  We are both no longer in limbo and I can slowly pick up the pieces and move on.

I need to take time and work on myself and then I can figure out what my next step is. I want to get a job and I plan on staying in the house Jason made for us.  Every square inch of this place is him and I need to be here.

Now I want to focus on his beautiful life.  I can't wait to see all of his friends and talk about what a great person he was to hang out with.

God Bless you all,
Marissa
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12/03/2013
by Joyce Ruisi Chmel
The Viewing and Funeral will be held this Saturday, Dec 7th afternoon at Our Lady Of Guadalupe Church on Buckingham, Pa.  Once I get the details I will post. Inliew of flowers we asked that donations be sent to the Jason Chmel Fund. 
Love you all,
God Bless, Hold each other tightly, life is a bumpy ride.
Marissa
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12/03/2013
by Joyce Ruisi Chmel
Surrounded by all who loved him the most, Jason passed away peacefully in his home  He fought to the very end until his last breath.  He is at peace now and now we can begin to heal.

It is 4am and I am trying to tell my three year old where daddy went, but it is so hard for him to understand.  I feel badly for my kids.

Thank you so much for all of your support.  I think the funeral and viewing will be held this Saturday, but it has not been confirmed. I will keep everyone posted
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12/02/2013
by Joyce Ruisi Chmel

My Lost Love

©             Anne Spiller          
I have only just lost you the pain is hard to bear Do I have to go through life knowing you're not there please some one explain to me why he had to go are there any reasons I really need to know I sit here and remember all the lovely times we shared the talks the laughter of every one you cared I am told  the pain will ease in time and I will think of him without a tear but that will be impossible as I need to have him here He was my very world  to me my ever guiding star Just kiss me softly on the cheek and tell me where you are


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12/02/2013
by Joyce Ruisi Chmel

My Lost Love

©             Anne Spiller          
I have only just lost you the pain is hard to bear Do I have to go through life knowing you're not there please some one explain to me why he had to go are there any reasons I really need to know I sit here and remember all the lovely times we shared the talks the laughter of every one you cared I am told  the pain will ease in time and I will think of him without a tear but that will be impossible as I need to have him here He was my very world  to me my ever guiding star Just kiss me softly on the cheek and tell me where you are


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11/29/2013
by Joyce Ruisi Chmel

Thanksgiving went on as planned.  We had a wonderful dinner made by my mother.  I spent the whole day with Jason.  He can’t tell me, but I know he enjoys my facials and back rubs. 

I tried to feed him water chips, but Jason can not eat them.

Jason is slowly declining but his heart and the rest of his body is still very strong. Jason is healthy other than his brain cancer and that’s what makes this cancer so very ugly.  It takes the person away from the people they love before it consumes them totally.  But, Jason is still fighting this beast.  I know it in my heart he is.  My husband was never a quitter.  All of our neighbors who witnessed all the work he did outside including installing a split rail fence by himself on our property can attest to that.

 As gut wrenching as it is for me, I tell Jason how much I love him and it is ok for him to go.  I tell him that everything is going to be ok and I am going to take care of our boys the way he would have wanted them to be raised. 

Everyday I find it harder and harder to take care of Jason. Watching someone so young slowly slip away is torture.  I love him, but the only thing I can do for him is keep he clean and comfortable.  It is even harder to watch others take care of him because, he is my husband and I don’t want anyone else to touch him. 

Fear and realization slowly intensifies within me, especially at night that the father of my children is slipping away in my house.  Some nights I have to walk out of my house just so I can breath.  I can’t stand this waiting game.  I am here day in and day out waiting for my Jason to pass on.  This whole experience has changed me.  Unless you have been in my shoes you will never understand the things that I have witnessed and emotionally dealt with.  Watching someone die this way is life altering.  I found strength I did not know I had.  Nothing else seems to matter anymore except for Jason.  It is becoming more difficult, but he will carry out the remainder of his days with the people he loves and the home that he made beautiful.

Jason sleeps for most of the day and once in a while he will open his one eye.  He can not open the other eye due to the pressure in his head. We flood him with extra love when he is awake and I can tell he takes it all in.

I never thought I would get to say this, but today is Jason’s birthday and he made it to 43.

Happy Birthday my love,

Marissa


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11/26/2013
by Joyce Ruisi Chmel

"Worn"

 

I’m Tired I’m worn

My heart is heavy

From the work it takes

To keep on breathing

I’ve made mistakes

I’ve let my hope fail

My soul feels crushed

By the weight of this world

 

And I know that you can give me rest

So I cry out with all that I have left

 

Let me see redemption win

Let me know the struggle ends

That you can mend a heart

That’s frail and torn

I wanna know a song can rise

From the ashes of a broken life

And all that’s dead inside can be reborn

Cause I’m worn

 

I know I need to lift my eyes up

But I'm too weak

Life just won’t let up

And I know that you can give me rest

So I cry out with all that I have left

 

Let me see redemption win

Let me know the struggle ends

That you can mend a heart

That’s frail and torn

I wanna know a song can rise

From the ashes of a broken life

And all that’s dead inside can be reborn

Cause I’m worn

 

My prayers are wearing thin

Yeah, I’m worn

Even before the day begins

Yeah, I’m worn

I’ve lost my will to fight

I’m worn

So, heaven come and flood my eyes

 

Let me see redemption win

Let me know the struggle ends

That you can mend a heart

That’s frail and torn

I wanna know a song can rise

From the ashes of a broken life

And all that’s dead inside can be reborn

Cause all that’s dead inside will be reborn

 

Though I’m worn

Yeah I’m worn

 


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11/26/2013
by Joyce Ruisi Chmel
Sitting here at 5 in the morning, listening to Jason breath.  Every breath is a blessing for me, but I know it is one less breath my beloved Jason gets to take.  I just told him how much I loved him and he told me he loved me too.  I told him he was surrounded by so much love and that so many people are praying for us and are there for us.

Jason is very comfortable in our home and at this point he sleeps a lot and his breathing is very heavy.

Hospice said, Jason does not have a lot of time left. 

All I can do is make sure he is clean and comfortable.  I constantly tell him how special he is to me and I am the luckiest person to married to him.  

Despite everything that has happened to us we all always had each other and that is what it is all about.
Thank you for your continued support,
Marissa
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11/24/2013
by Joyce Ruisi Chmel

Sorry I have not posted lately.  I have been very ill. 

I want to first say thank you to Marie B and all her elves for coming over last week and decorating our house for xmas.   Our home is beautiful.

 

Jason had a seizure yesterday.  It was his second time. The first one was back in August  when he was first diagnosed.   He is not making a lot of eye contact and he does not want to eat at all.
I am struggling to find more words.  But, um I don't know what to stay.  All I can say is that I have never felt this type of sadness before.  It is a new feeling that is ripping my heart into shreads and I can't breath and this really sucks.  I am suppose to watch what I say, but I don't care.  The whole thing is horrible.  I have chills.  I knew things would get to this point but at the same time I still can believe this is really happening.

When we lost our jobs, I thought it was the end of the world.       
It could not have been have been further   from the truth.   When his father became I ill I thought well things could not get any worse. I was way wrong. Then Jason became ill and I was like, what the hell?!!!!Through this whole thing I tried to remain positive.  I even continued look for a job, but I soon realize I could not even get an interview. Jason used to joke and say someone with a PHd must have snatched it up because I only have a BA. At that point I thought I was cursed. 
I know God has something planned for me , I just don't know what it is. Whatever it is,I hope it is good bc I am working on fumes at this point.

1 Lost Jobs
2 My father in law is diagnosed with cancer.
3 Jason is diagnosed with terminal cancer.
4 Jason's dad dies while Jason is recovering from his first craniotomy.
5 Jason has 2 more craniotomies and is declining.
6 Jason is under the care of hospice now and he will be at peace somewhere between today and in the next few weeks. Right between two major holidays.  Our Chmel curse does not disappoint.

Love each other like there is no tomorrow.
Be kind and patient.
And just live life the best way you can.

Marissa











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11/18/2013
by Joyce Ruisi Chmel
Jason had a good weekend.  We had a lot of friends and family come over to visit.  Jason was so happy to see his buddies from Scranton, Pa.  He has known them since college and it does not take much to tell that they love him very much.  Jason used to tell me all the crazy parties he used to have at his house and they have so many wild and funny stories that could fill an evening with light and laughter.  It was nice to hear chatter and laughter throughout our home.  We are truly blessed with love that surrounds us. 
I posted more pictures of my sweet love.
God Bless,
Marissa
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11/16/2013
by Joyce Ruisi Chmel


I put a new family picture up  as our cover photo and they were done by non- other than Candy Hoehn of SugaShoc Photography.

Thank you Candy Hoehn for sending me pictures from the photo shoot you did a few weeks ago.  Your work is beautiful. 

Candy Hoehn of SugaShoc photography  located in Doylestown, Pa is helping the Chmel family  by doing a Photo Holiday  Fundraiser .  If you book a 30 minute session with her for the holidays she will donate  50% of her sales to the Jason Chmel Fund.  The cost is only $150 and it includes a certain amount of pictures. 

Please check out her amazing work at http://sugashocphotography.com/

Also in the picture section of the youcaring website you can see an advertisement  for SugaShoc.


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11/13/2013
by Joyce Ruisi Chmel
Thanks for everyone's support.  I need it more than ever.  Please do NOT think you are bothering me.  I NEED distraction.  Jason is young and healthy other than his brain, so this may me be a very long process.  He is eatting mushy food and he is trying to drink shakes.  He is still producing urine and the color looks good. But neurologically he is declining. He fell twice yesterday.  Once out of his wheel chair and yes i had his seatbelt on.  Second time happen when I tried to put him on the couch.  I picked him from his chair , but his legs just went out and he took me down with him. 
I want this to be as pleasant as posible for him. I wash him everyday, then I put lotion on him and massage his legs, feet, arms and hands.  I put on a new clean outfit a day.  His room is always clean and tidy. I want him to feel as normal as posible.  I want him to feel like  he is the only person that matters in the world.  I will carry out his wishes to the end.  He made our home beautiful and he is going to die in our home with dignity.  I will not let this cancer take that away from him. 

I lay with him everyday and put my head over his heart and listen to it beat.  It is very soothing to me and it relaxes me. 

I love all you  and I pray for all you health , peace and happiness.

That is what only matters in life.

I love you,
Marissa


PS

I am so happy Candy Hoehn of http://sugashocphotography.com/  was able to capture our love.  Please check out our pictures they are beuatiflul and she is donationg half of her holiday family picture 30 minute sessions sales towards the Jason Chmel Fund.  Please share as much as posible, we are still contiuing our fundraiser.



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11/13/2013
by Joyce Ruisi Chmel
Thanks for everyone's support.  I need it more than ever.  Please do NOT think you are bothering me.  I NEED distraction.  Jason is young and healthy other than his brain, so this may me be a very long process.  He is eatting mushy food and he is trying to drink shakes.  He is still producing urine and the color looks good. But neurologically he is declining. He fell twice yesterday.  Once out of his wheel chair and yes i had his seatbelt on.  Second time happen when I tried to put him on the couch.  I picked him from his chair , but his legs just went out and he took me down with him. 
I want this to be as pleasant as posible for him. I wash him everyday, then I put lotion on him and massage his legs, feet, arms and hands.  I put on a new clean outfit a day.  His room is always clean and tidy. I want him to feel as normal as posible.  I want him to feel like  he is the only person that matters in the world.  I will carry out his wishes to the end.  He made our home beautiful and he is going to die in our home with dignity.  I will not let this cancer take that away from him. 

I lay with him everyday and put my head over his heart and listen to it beat.  It is very soothing to me and it relaxes me. 

I love all you  and I pray for all you health , peace and happiness.

That is what only matters in life.

I love you,
Marissa


PS

I am so happy Candy Hoehn of http://sugashocphotography.com/  was able to capture our love.  Please check out our pictures they are beuatiflul and she is donationg half of her holiday family picture 30 minute sessions sales towards the Jason Chmel Fund.  Please share as much as posible, we are still contiuing our fundraiser.



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11/11/2013
by Joyce Ruisi Chmel

I am sorry to say that Jason's journey will be coming to an end soon.  Jason's MRI showed that the tumor has progressed to the left side of his brain.  He also has problems swallowing.  He can not do chemo anymore and I have called in Hospice for help.  I am numb, angry, sad,scared and insane.  I am going to lose my friend, the of my children, my love.  I have never felt pain like this in my life.   This slow death is killing me.  I took care of Jason for 15 months and now it will be coming to an end soon.  I can't believethis  is really happening. I wish  it was me. I wish it was me. I wish it was me.


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11/09/2013
by Joyce Ruisi Chmel
Jason's long time best friend Dave Ferrone was over today.  He spent the day with him  and caried for him.  Dave has been so good to us.  I know Jason would have done the same for Dave's family.  Jason and Dave are like brothers and they share so many memories growing up around a lake every summer up in North Jersey.  I feel so blessed to have him in our lives.  He calls my youngest son Stinky and the funny thing is that he will respond to that name.  The boys love Dave as well.  I wish him and his wife Christy lived closer because they are so special to us.

Thank you Dave
Jason loves you too.
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11/08/2013
by Joyce Ruisi Chmel
"Gone, Gone, Gone"
When life leaves you high and dry I'll be at your door tonight If you need help, if you need help. I'll shut down the city lights, I'll lie, cheat, I'll beg and bribe To make you well, to make you well.
When enemies are at your door I'll carry you away from war If you need help, if you need help. Your hope dangling by a string I'll share in your suffering To make you well, to make you well.
Give me reasons to believe That you would do the same for me.
And I would do it for you, for you. Baby, I'm not moving on I love you long after you're gone. For you, for you. You will never sleep alone. I love you long after you're gone And long after you're gone, gone, gone.
When you fall like a statue I'm gon' be there to catch you Put you on your feet, you on your feet. And if your well is empty Not a thing will prevent me. Tell me what you need, what do you need?
I surrender honestly. You've always done the same for me.
So I would do it for you, for you. Baby, I'm not moving on, I love you long after you're gone. For you, for you. You will never sleep alone. I love you long after you're gone And long after you're gone, gone, gone.
You're my back bone. You're my cornerstone. You're my crutch when my legs stop moving. You're my head start. You're my rugged heart. You're the pulse that I've always needed. Like a drum, baby, don't stop beating. Like a drum, baby, don't stop beating. Like a drum, baby, don't stop beating. Like a drum my heart never stops beating...
For you, for you. Baby, I'm not moving on. I love you long after you're gone. For you, for you. You will never sleep alone. I love you long after you're gone. For you, for you. Baby, I'm not moving on, I love you long after you're gone. For you, for you. You will never sleep alone. I love you long, long after you're gone.
Like a drum, baby, don't stop beating. Like a drum, baby, don't stop beating. Like a drum, baby, don't stop beating. Like a drum my heart never stops beating for you.
And long after you're gone, gone, gone. I love you long after you're gone, gone, gone.

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11/08/2013
by Joyce Ruisi Chmel

Jason is home now, but he is still having problems swallowing which could be a sign of progression.  I took him to get an MRI today.  But, I already know what they are going to say.  I was able to feed him soft foods such as icecream, yogurt, bananas, and mashed up mac and cheese one of MEAL TRAIN volunteers made for us tonight.  Jason is still fighting and he is not ready to quit.  I am in his corner as always.  Reminding him every second that I love him and everything is going to be ok with the boys and our house that we fixed up together and put so much hard work and love. I will look for a  job and take care of our boys. 

He was awake today looking at a book.  He reached out and touched my arm.  He said the Our Father after communion. 

I am making a mantle for the fireplace because he did not have the chance to make  one and I just want him to get the chance to see it finished.  I am going to put are initials in the wood to make it so extra special.

I have acceped our fate, but I will alwasy hate cancer and what it did to us for 15 months. We have been in hell for 15 and we did nothing to deserve this.   I would trade places with Jason in a heartbeat.

God Bless you all for being so good to us.

THE PLAN

Jason is going to stay home with me and the boys.  I will take care of him, bathe him, and feed him the best way I can.  I will make sure he is peaceful and content and we are going to enjoy what is left of our time.  This love story does not get a happy ending.  But we are going to live the rest of his life  like ROCK STARS.






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11/06/2013
by Joyce Ruisi Chmel

I took Jason to Doylestown Hospital today because he has not been able to eat or drink properly.  I was worried he would get too dehydrated and become more ill.  Jason is down to 158 pounds from not eatting.  It is not from the chemo.  He wants to eat but something is preventing him from doing so.  It is amazing what the brain can do.  He also has what looks like two symetrical ulcers on the back of his bottom teeth under his tounge.  We are not quite sure what is causing that as well, but I am sure it is all connected.  I went to the Giant today in Doylestown and found things I could fatten him up.  He is home now and I am working with him on his puzzles while we wait for our bake ziti that one of our nice volunteers from meal train delivered today.Because of our Meal Train volunteers, we are able to have a great meal without the stress of cooking or cleaning.  I want to thank all my "chefs" for their amazing meals.

God Bless all of you and your families.
Marissa




 


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11/06/2013
by Joyce Ruisi Chmel

I took Jason to Doylestown Hospital today because he has not been able to eat or drink properly.  I was worried he would get too dehydrated and become more ill.  Jason is down to 158 pounds from not eatting.  It is not from the chemo.  He wants to eat but something is preventing him from doing so.  It is amazing what the brain can do.  He also has what looks like two symetrical ulcers on the back of his bottom teeth under his tounge.  We are not quite sure what is causing that as well, but I am sure it is all connected.  I went to the Giant today in Doylestown and found things I could fatten him up.  He is home now and I am working with him on his puzzles while we wait for our bake ziti that one of our nice volunteers from meal train delivered today.Because of our Meal Train volunteers, we are able to have a great meal without the stress of cooking or cleaning.  I want to thank all my "chefs" for their amazing meals.

God Bless all of you and your families.
Marissa




 


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10/29/2013
by Joyce Ruisi Chmel

Jason spent last Sunday with his best friend Dave fishing up in North Jersey.  Check out the pictures!


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10/29/2013
by Joyce Ruisi Chmel
Hi Everyone,
   
We are making memories this week by getting pictures taken of our family by the wonderful and talented photographer ,Candy Hoehn. Candy specializes in family portraits, pregnancies and       babies/ children photos. Once she heard about our situation, Candy not only wanted to offer her services to us by capturing the love  Jason and I share towards each other and our children, but she also wanted to donate future portions of her holiday sales to  Jason's Medical and Everyday living expenses .  50% of her profits are going towards the our families' needs!!!!

So, if you were thinking about taking family photos this holiday season   and want to help a great cause check out the add in the photo section of this fundraiser and call Candy.
   
You can also help by sharing this information to  everyone you know in the surrounding     Doylestown, Pa area.

http://sugashocphotography.com/


   
I can't wait to share our family pics.
   
Thank you and God Bless.
   
Marissa Chmel
     

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10/24/2013
by Joyce Ruisi Chmel
I want to say a huge THANK YOU to Buckingham, Pa Pack 169 for putting together the dinner fundraiser at Wendy's.  It was a wonderful turnout and I met so many caring people in our community.  Thank you for all who participated in this.  I know it is not easy to come out on a school night, but as a mom I know it is nice to not cook dinner and clean up afterwards.  Not only am I lucky to live in this community, but I feel blessed.  I knew I lived in an awesome town, but this horrible situation that I am in has really shed light on the type of loving people that surround me.  My days are grim and filled with dispair and it is the kindness of others that lift me up from my dreaded reality.  Many people come up to me and say, I can not imagine what you are going through.  And I just have say if it were not for my family, friends, neighbors and community , I don't know what I would do.  Thank you.
Even "Small" act of kindness as my son would say is "epic" so please don't ever apologize for any type of act of kindness.
Love each other like it is your last day, because you never know what tomorrow may bring.
I Love you all with the bottom of my heart and God Bless.
Marissa
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10/22/2013
by Joyce Ruisi Chmel
Taking Jason for a walk outside today to see all the fall colors.  Jason loves the fall and I think it will lift his spirits.  If anyone has any good recommendations for places  to take Jason outside in the Doylestown area and is wheelchair friendly please reply in the comment area.  I dont want him to get bored with the same walking route.
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10/22/2013
by Joyce Ruisi Chmel
Taking Jason for a walk outside today to see all the fall colors.  Jason loves the fall and I think it will lift his spirits.  If anyone has any good recommendations for places  to take Jason outside in the Doylestown area and is wheelchair friendly please reply in the comment area.  I dont want him to get bored with the same walking route.
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10/21/2013
by Joyce Ruisi Chmel
I would like to say a big thank to all of you who have made a donation or sent well wishes these past two weeks.  Your help means more to me than you will ever know.  Without your help I would not be able to take care of my Jason who requires 24/7 care from me. God Bless all of you and your family.  Please make everyday count and don't sweat the small stuff.. 
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10/21/2013
by Joyce Ruisi Chmel

Last night  Jason fell while taking a shower.  He hit his head and cut his forhead.  I was able to get him out of the shower but he was feeling dizzy so i called 911.  They took him to Doylestown Hospital and the Dr order a catscan. Everything looked good and he only needed a few stiches.  Jason is safe and is sleeping in his bed right now.  It was a very stressful evening, but we got through it.

God Bless,
Marissa


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10/20/2013
by Joyce Ruisi Chmel

THANK YOU!!!

 

On behalf of the Chmel and Diaz Families, I want to take this opportunity to thank everyone that attended the pizza fundraiser, for Jason’s Battle, held at the American Legion Post #458, Friday, 10/18/13.  I wish to thank all the workers (pie makers, bartenders, waitresses, etc.) that donated their time and effort in making this such a memorable event! I am overwhelmed by the other  American Legion members (from Posts #314 & #414) that attended and were so generous.  I also wish to thank the members of the VFW’s (3022 & 491) that attended and donated as well.  The members of the Trenton Fire Department , its union – thank you all so much!  I also wish to thank all the military personnel for attending  and donating.  All of our friends and co-workers – thank you for being there for our family and your generosity! Joe and Mikey – thank you for donating your time as the DJ’s!   The fundraiser was a huge success – raising over  $7,700.  Again, thank you from the bottom of our hearts!!

 

GREY MATTERS!!!

 

Marissa, Jason, Emilio & Marcello Chmel

Pete & Diane Diaz, City Beef Company, Inc.


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10/20/2013
by Joyce Ruisi ChmelShare This Update!


10/17/2013
by Joyce Ruisi Chmel

FUNDRAISER REMINDER ALERT TO ALL MY NEW JERSEY PEEPS!!!!!

The American Legion Pizza Fundraiser is tomorrow.  There will also be a chance for one lucky winner to get a new flat screen TV! It starts at noon and ends at 8PM.  Please see past post for further details.
Hope to see you there.
Marissa

PS . The Wendy's fundraiser next week ends at 8PM.  Hope to see you there as well.




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10/13/2013
by Joyce Ruisi Chmel

I took the family out to Del Val College for some apple picking today.  The kids had a great time spending the day with their daddy.  Today was a good day for making memories. 

Thank you to all the recent supporters who made a donation this week.  Thank you for taking the time to read our story and for keeping us in your thoughts and prayers. God bless you and your family.

Just as a reminder The American Legion Fundraiser In Mercer County, NJ  is this Friday October 18.  There is an older post with more info about that.  I hope you can make it.  It should be a lot of fun.  If all goes well we should be there around 5PM.  My Dad, Pete and my stepmom Diane will be there as well.  So I hope to see you there!

Jason begins out-patient therapy for the second time tomorrow.  I hope he has the strength to get through it.  Jason's cancer is taking a toll on his personality.  He does not rememer the old Jason.  It stinks living and taking caring of someone you don't really know anymore.  Positive note, he is not in any pain and he is has the best quality of life the thanks of yours truly.

There is an online petition to get Apple to help fund and bring more awareness to brain cancer.  If you would like to be apart of this petition please contact me   via the "comments" section on this homepage.  I think you can only do it if you have a facebook account, but I will double check.

Peace , Love and Happiness to all of you and your loved ones.

Grey Matters!
Marissa


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10/11/2013
by Joyce Ruisi Chmel
We were just interviewed by the Intellegencer Newspaper in our area.  It will be out on October 13th.  We are hoping we can keep spreading the word in our area and beyond.  Thank you all for your continued support.  Wendy's Fundraiser is coming up soon.  We hope to see you there!!!!
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10/10/2013
by Joyce Ruisi Chmel
Tuesday night's fundraiser was a success and a lot of fun.  I want to say thank you to Maureen Sapelli and Steve from Dairy Queen for putting this together. The employees at Dairy Queen were amazing. I would also like to say a big thank you  to all of you who came out to support the Chmel family, including Our Lady of Guadelupe family, C.E.C. family, Cold Spring Elementary friends Doylestown United Methodist Church and everyone else in the surrounding area.   I was so overwhelmed with how many people showed up and we feel so blessed.  I wish Jason could have seen all the support and love that was there.
God Bless you and your families.
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10/08/2013
by Joyce Ruisi Chmel
Thank you all for your recent donations and support.  Your help is greatly and deeply appreciated.

I have been meeting the most amazing people around this community and beyond.  The meal train ladies are like angles.  I don't know what I would do with out them. 
The other day I went to my son's school and I felt a little awkward at first, but people kept coming up to me and it was such a pleasure to met them.  I hope I get to meet more of you tonight at the Dairy Queen Fundraiser in Doylestown.  Our Lady of Guadelupe and the Owner of Dairy Queen were nice enough to put it together.

Jason had some good days last week, but this week he has slowed down a bit.  He took a couple of falls.  Once in the shower and once in the kitchen.  His legs must have gave out.  It might of had something to to do with his medication.  He is ok and was not badly hurt.  He just needs a little more rest this week.


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10/03/2013
by Joyce Ruisi Chmel



Pack 169 Dinner Fundraiser

Place: Wendy’s

           400 N. Main Street

           Doylestown, PA

Date:Tuesday, Oct 22, 2013

Time:5PM to close

Pack 169 would like you to please come out for dinner at Wendy’s and support a local father age 42, battling Terminal Brain Cancer.

Anyone who purchases food that evening and mentions Pack 169, will have a portion of their purchase donated to the Chmel family.  Funds will help pay medical bills and everyday living expenses.  For more info on this family, please go to: www.youcaring.com/jasonchmel

If you are local please share this with your friends and family. 

Thank you Sarah Bliss and her Pack #169 for putting this together.

 


Grey Matters!!! 


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10/02/2013
by Joyce Ruisi Chmel

We just got word from our doctor that Jason had a great looking MRI scan.  Things can always change, but today we will take the victory and celebrate.  Yesterday, Jason answered the door, put away some clean dishes and recycled something all by himself.  This morning he got out of bed with no help.  Please keep the prayers coming. We are still in the fight and NOT backing down!!!!!!!!
Marissa


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09/29/2013
by Joyce Ruisi Chmel

Jason and I had a wonderful time at OLG church today.  So many people came up to us and introduced themselves.  The boys had a blast making a scarecrow. We feel so supported and blessed by our extended family in the community.  Check out the pics!
Thank you,
Marissa


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09/25/2013
by Joyce Ruisi Chmel

For those of you who do not know, Jason and I are originally from New Jersey.  I am from Central Jersey, Mercer County to be specific.  I graduated from Ewing High School then went to Mercer County Community College for two years and finished with a BA at The College of New Jersey. We both worked for New Jersey Network Television up until we were laid off. My parents, Pete and Diane (City Beef Co. Inc) currently live there and are very involved in the community.
I am writing this because I found out that The American Legion Post #458 will be having a fundraiser for Jason on Friday, October 18th from noon to 8PM.  The American Legion is located on 1438 Brunswick Ave, Trenton, NJ 08638.  They will be serving pizza all day. If you work in the area, you can stop by and have lunch or stop by later with your family for dinner. Please come and support this great cause.  I just want to say a big thank you in advance to The American Legion Post #458 for your support.


GREY MATTERS!
Marissa


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09/20/2013
by Joyce Ruisi Chmel

A big thank you to to Chubby's Dairy Barn in Pipersville, Pa and to everyone who went there last night to help support my husband Jason.
God Bless,
Marissa


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09/19/2013
by Joyce Ruisi Chmel

Please check out this weeks, Bucks County Herald Newspaper, www.buckscountyherald.com

In the "Living" section.  It is the last of our 3 part story.  It was written by Regina Young, one of the best reporters/ writers of our time. ( I am really not being bias :) This part talks about renewing our wedding vows at Our Lady of Guadalupe Church.  There are some wonderful pictures as well, taken my the talented Regina Young(once again not bias). 
I would like to thank Regina for all of her hard work these past few weeks for getting our story out.  So many people have been touched by our story and her words. It was raw and it was real, but that is life. 
  I could have stayed in bed curled up in a ball and cried, "why me", but Jason always reminded me, he was still "here" and living.  I made a promise to him that I would not cry as much and that we would start living.  Each day is special for me, because Jason is still here.

Not only do I want to bring awareness to this dreadful disease, but I also want people to take something more from this.

Cherish everyday and everyone.  Life is a journey and it is a path that should never be walked alone.

This is no longer "our" problem.

Thank you,
Marissa


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09/17/2013
by Joyce Ruisi Chmel
I feel so blessed to celebrate our 8th anniversary today.  I love you Jason.
Marissa
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09/08/2013
by Joyce Ruisi Chmel

I just gave Jason a hair-cut.  He looks great as always and now he is spending his Sunday watching Football. 


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09/07/2013
by Joyce Ruisi Chmel
Jeff Pearson was the pilot in the picture.  Thank you Jeff for making dreams come true.  It was an amazing flight.  We will never forget this day.  You just gave us one more awesome memory.
Yours Truly,
Marissa
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09/07/2013
by Joyce Ruisi Chmel
Thanks to Joe Martin and His friend/Pilot Jeff, Jason was able to get his wish come true.  Jason and I flew in a single engine plane from West Trenton, NJ to NYC.  We flew for around for about an hour and it was a beautiful day.  Everything was crystal clear.  We feel so special, because not many people get to see views like this of NYC.  It was such a wonderful and surreal adventure.  It is the coolest thing Jason and I have ever done.  Jason had the best time.  He just took it all in.  I am so happy for him.
We are so greatful for that special moment.
Please enjoy the pictures.
Marissa
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09/06/2013
by Joyce Ruisi Chmel

http://www.buckscountyherald.com/news_stories/9-5-13/Grey_Matters.html

 Here is another link to our story.  Thank you again, Regina Young


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09/06/2013
by Joyce Ruisi Chmel
It is called the Bucks County Herald and it is a 3 part series. Section B, page 18 after sports.   Let us know what you think under comments.
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09/05/2013
by Joyce Ruisi Chmel
Jason's story came out today in the Bucks County Herold.  It is page 18.  It is a two part series.  The second part will be out late next week. We are very proud of our story.  Please check it out.  It takes up a whole page!  Getting the word out about brain cancer one paper at a time.  I would like to thank Regina Young for writing our story for the B.C. Herold.  She is a very talented writer who I know will go far in life.  She was able to described my life better than I could have. Where would we be without writers...? 
If anyone has any suggestions on how to get the word out more, please message me. 
Jason is still doing well and is excited about going on the private plane ride to NYC tomorrow.  Please make sure to check back for pictures and I may have video to post. 
Thank you all for your continued support and God Bless you all.
Marissa
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09/04/2013
by Joyce Ruisi Chmel
Mark your calenders!
Dairy Queen, located on 318 N. Main Street in Doylestown, Pa wants to have a dinner and desert fundraiser for Jason on Tuesday, October 8.  It will be from 5PM to 9PM.  If you live near this area, please come out.  25% of the profits will go towards Jason and his family.
I will put in a reminder when the event date gets closer.
Grey Matters!

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09/04/2013
by Joyce Ruisi Chmel
Jason was able to come home today from the hospital. The doctors still do not know why he had a fever to begin with.  They could not find any infection.    Jason was able to receive his chemo today and he feels great.  When he came home he ate Chicken Marsala.  It was an amazing dish made by one of the ladys who signed up for our meal train.
Jason is in good spirits and he was happy to see his two boys and his mother.
Thanks for all the well wishes.
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09/02/2013
by Joyce Ruisi Chmel
Jason is getting his wish granted this Friday.  We are going on a plane tour ride around New York City.  The look on his face was priceless when I told him . I wish I took a picture of that moment.  He has such a beautiful smile. I am so happy for my Jason. 

GREY MATTERS,

Marissa


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09/02/2013
by Joyce Ruisi Chmel

Thank you Linda Stickney.  You are our 100th supporter!Jason and I are just thrilled with all of the love and support everyone has given us.  All of your support gives us the energy and drive to keep the fight going.  We will not stop fighting this cancer. Jason is still in the hospital, but he should be leaving tomorrow.  His fever is gone and we are waiting for one more testresult to come back.  Please keep praying for Jason and send positive thoughts are way.  Thank you!


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09/01/2013
by Joyce Ruisi Chmel
"God our Father, walk through my house & take away all my worries & illness &  please watch over & heal my family & other families too ... amen
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09/01/2013
by Joyce Ruisi Chmel
The Doctor said Jason's blood pressure dropped a little and they want to keep him over night for observation.  It takes 24 hours to find out if he has an infection in his blood.  Please Keep Jason in your prayers. Anyone  can write a comment if you would like to send Jason well wishes.

Cherish and Honor your loved ones everyday.  Don't sweat the small stuff.  Live your life the best posible way you can. Never take time and people for granted, because you never know what tomorrow may bring. 

GREY MATTERS!

God Bless you all,
Marissa
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09/01/2013
by Joyce Ruisi Chmel
So far all the test are coming back ok.  We are just waiting for one more test.  

I also wanted to mention that Jason had a wonderful day yesterday.  He spent the day with his best friend Dave setting off massive fireworks.  Sorry neighbors.  Jason has always loved fireworks since he was kid.  He even smiled a few times!!!!
Marissa
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09/01/2013
by Joyce Ruisi Chmel
Jason was not looking to well this morning when he woke up. He felt a little warm, so I took his temp and it was 100.3.  For someone on chemo that could mean infection.  I took him to the hospital and where they will  be doing some cultures on him.  Doc says so far his white blood cell counts look good.  Jason's temp went down as well. They are giving him fluids and they just took him in for a chest x-ray.  Please keep Jason in your prayers.  I will update you all as soon as I hear more.
Marissa
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08/31/2013
by Joyce Ruisi Chmel

We celebrated my birthday a little early and Emilio asked me where were my presents.  I told him you guys are my presents.  What else could a mom ask for?  I am so blessed to have my family.

Check out the new pictures!  Jason came out!!!

Grey Matters!
Marissa


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08/30/2013
by Joyce Ruisi Chmel

I just confirmed with Msgr. Gentili.  Jason and I will be renewing our vows Friday, September 13, 2013 at 11am at Our Lady of Guadelupe Church.  This is very informal.  We are not sending out invites, there will be no big party following the ceremony  and gifts are not accepted.  This is just a day to celebrate and witness our love for one another.  Anyone is welcome to come to the church.  If for some reason Jason is too sick to go to church, we will have a private ceremony at our home and I will let you know the morning of on this website.
Thank you all for your support.


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08/29/2013
by Joyce Ruisi Chmel
I just popped Jason the big question and ask him if he would marry me again and he said yes.  We will be renewing our wedding vows at Our Lady of Guadelupe.  This will be our 8th anniversary.  We would love for all you who can make it.  This is very informal and we do NOT want presents.  This day is about 2 people in love and we want to share it with all of you.  The date has not been confirmed, but it might be Sept, Friday the 13th.  We want to keep the streak going. Ha Ha.  I will confirm a date asap.  I hope  you can make it.
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08/29/2013
by Joyce Ruisi Chmel

Jason could not go to physical therapy today, because his legs gave out and he fell to the ground.  My mother and I tried to pick him up, but he could not move a muscle.  We were finally able to get him back into bed.  I checked his temp and it was ok.  Jason appeared very pale and we think his sugar was low.  So I gave him some orange juice and pieces of chocolate.  He started feeling better afterwards and he had two pieces of pizza.  Jason is laying next to me in bed right now.  I want to make sure he is ok.  He is having problems speaking today because of the cancer.  I hope his voice comes back.. 
Please pray for Jason.

Remember GREY, Because it should matter to everyone who has a brain.

God Bless you all,
Marissa


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08/28/2013
by Joyce Ruisi Chmel

I just signed up for twitter for anyone wants to follow us!  My twitter name is diaz_jujubee05

Marissa


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08/28/2013
by Joyce Ruisi Chmel

A beautiful friend of mine named Julia lost her amazing/wonderful handsome husband, Kim recently to GBM. She posted some interesting facts about brain tumors.  If you would like to check it out, please go to my facebook page to read the facts.  You can friend me if you like. I go by Marissa Diaz.  Please keep Julia and her two boys in your prayers as well.  They have been through so much.  Her strength is a true inspiration to me.  This disease has made us very connected.  I had the honor of meeting Kim before he passed. He was a great man, father and husband.  I as well as many others are so blessed to have met him.  He will hold a place in many hearts. 


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08/26/2013
by Joyce Ruisi Chmel
Once again Jason did very well with outpatient rehab today.  Jason and I had an interview with a reporter from the Harold Newspaper.  It is a local paper in our area.  We will keep you posted as to when the  story will be out.  If you are not from the area, I will send you the link. 
We are so taken back by all the support from our family, friends, and community.  The outpouring of emotion over Jason is amazing.  We are so thankful for all of your generosity.  Jason and I once thought this was "our problem" .   We did not want to bother people, but the burden of this disease was too much to handle on our own.  Thank you everyone for being apart of our journey .I am truly humbled.    
May God Bless you all,

Marissa Chmel

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08/23/2013
by Joyce Ruisi Chmel
Thank you so much for your continued support everyone.  I just wanted to make one thing clear.  In the begining of Jason's journey he did not have health insurance, he only qualified for partial/temp insurance through the state, but then he was dropped after the new year.  He was forced to stop all of his treatments, he could not have his routine MRIs  and he could not see any of his doctors.  That was a really scary time for us.  I prayed every night that his tumor would not grow back.  In March of this year , Jason was able to qualify for health insurance through the state because of his terminal cancer.  Please keep Jason in your prayers.  Everyday is a blessing with him.
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08/23/2013
by Joyce Ruisi Chmel
Dispite having chemotherapy last Wednesday, Jason did very well at rehab today.  By the end of the day he was wiped-out and hungry.  Way to go Jason!!!! 

A lovely person by the name of Maureen from Our Lady of Guadelupe Church stopped by to meet with Jason.  She gave him a shaw that has been blessed to keep him warm during his chemo sessions. 


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08/22/2013
by Joyce Ruisi Chmel
Last update was from Marissa
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08/22/2013
by Joyce Ruisi Chmel
       Yesterday was Jason's first day of chemo treatments.  Jason was unable to speak for a while at the hospital, so in order for us to talk and kill time I told him to write his responses down on paper.  I asked if he felt sick and he wrote no.  I asked him if he felt happy or sad, he wrote happy.  I asked him what he thought of me and he wrote my name with a heart next to it.  (I hate this cancer)
      Each treatment takes 90 minutes.  First they gave him Avastin and then Camptosar.He tolerated them very well.  He had his own room and he slept through most of the treatments.  The nurses at Doylestown Hospital were wonderful.  Jason will be going every other week for chemo treatments. 
       Last night for a brief moment Jason was back to his old self.  It only lasted about five minutes and then he was silent again.  If anyone has ever seen the movie "Awakenings"  with Robert Dinero, you will understand. I took advantage of that precious moment and told Jason how much I loved him and how I was so lucky to be married to a wonderful person.  Afterwards, I ran into the other room to get his friend Dave, so that he could see Jason back to his old self, but by the time I came back he was looking into space.  (I hate this cancer).  Please keep Jason in your prayers.  He is a true fighter.
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08/20/2013
by Joyce Ruisi Chmel
Jason is having 3 hours of Physical, Occupational and Speach therapy as we speak.  He is doing well with it so far.  We hope he keeps up the good work.  Quitting is not in his vocab.
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08/19/2013
by Joyce Ruisi Chmel
Marissa Posted the last update.
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08/19/2013
by Joyce Ruisi Chmel
Jason had a good day today. The home nurse checked on his new port and said it looks great.  His temp  and blood preasure were good.  Later in the day Rosanna and Mrs. Bua stopped by to visit the family.  It is always so nice forJason to see old friends.
Jason begins his out-patient rehab tomorrow and the following day he will begin his chemotherapy.  I will keep everyone posted as to how he is handling everything.  I asked Jason again how he felt today, he said he was happy.  Jason's balance is off today.  When he stands he tilts to his right so it is difficult for him to walk straight.  He does not complain, he just tries his best. 

People keep asking me about the children.  Marcello and Emilio are doing well.  With Emilio, we have been perfectly honest with him about his daddy's cancer.  He knows that some people get better from cancer and some people don't.  Jason is one of those people who wont.  The toughest part about this whole thing are the kids.  When I look at them I just want to cry, because they have the perfect daddy.  It's not fair to them.  I hope they know in the future how wonderful he is.  I can't imagine them growing up without their beloved father.  It is on my mind all the time.  I don't want them to be scarred from this.  My wish would be that we can  all grow from this and be a stronger family.  We are going to need a lot of help.
I took Jason for a walk today around the yard and we threw a football back and forth.  He did really well.  After we were done we gave each other a big hug and I told him, he was my best friend and that I loved him with all my heart.  In return, he gave me a kiss.  Today was a great day to remember.
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08/18/2013
by Joyce Ruisi Chmel

Jason's old friends came over today to visit.  They took him out to Triumph Brewing Company in New Hope, Pa for some Burgers and Beers.  It is great to see him hanging out with his buddies. 
To: Russell Brooks, David Smith and Joe Lafferty, thank you so much for spending time with Jason. 


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08/18/2013
by Joyce Ruisi Chmel
On Friday, Jason had a port put in his arm at Doylestown Hospital where he will be receiving Chemotherapy starting next week  He will continue his chemo treatments every other week.  Thank you to all the nurses that help with Jason at Doylestown Hospital.  You are all amazing people.  Jason will also begin out-patient physical and occupational therapy.  Keep up the good work!  Please keep your comments coming from our "youcaring" website because Jason loves reading the encouraging words.  Even if you can not donate, we would love to hear from you and please continue to share our website.
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08/14/2013
by Joyce Ruisi Chmel
Jason and I went to see the neuro surgeon this afternoon in Philly to discuss the "next step".  I asked the surgeon, if Jason's tumor grows would he go in again and remove it.  He said no, because it would effect his quality of life. I knew in my heart the answer already, but I had to hear it from him.  Jason will be getting a port put in this Friday  so he can receive two different types of chemotherapy.  This will at least help to  prolong his life a little.  If he becomes too ill from the treatments he will stop and live the rest of his cherished days with myself and our beautiful boys.  My wish is for him to stay with us in our once fixer-upper-home which he remodeled himself.  He put so much of himself into this house, it is only fitting that he live the rest of his days here.  Please keep sharing our story and please don't take time with your loved ones for granted, because you never know what tomorrow will bring. 
Just to give you a little background on the type of people Jason and I are, I would like to tell you what we did after hearing our worst case scenerio.  Most people would breakdown and cry and say,"WHY US"  Instead we went to South Street to Jim's Steak House and had the best cheese steaks ever and drank coronas.  If death is necessary end, then why not celebrate life. 
Thank you all for your continued support,
Marissa Chmel( A cancer warrior's wife) 

GREY MATTERS!!!!!!!


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08/13/2013
by Joyce Ruisi Chmel

Jason was feeling better today and had a lot of visiters come see him.  His best friend Dave Farone  was kind  enough to give him a shave. His co-worker from NJN, Cindy Carpenter  came by to spend some time with him and made him an amazing meal. My Dad," Pete the Heat from City Beef" and my step mother Diane stopped by to see Jason as well. Thank you Dad, Diane, Cindy and Dave for taking the time to hang out with Jason.  To Cindy, Jason LOVED your dish.  He cleaned the whole plate.  That was so kind of you.
Marissa


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08/12/2013
by Joyce Ruisi Chmel
The last update was from Marissa, his wife.
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08/12/2013
by Joyce Ruisi Chmel
Jason  has not been feeling himself for the past two days.  The doctor said to just keep giving him water, because he is dehydrated.  Jason is still his  family. Two of his very good friends were nice enough to visit today. 
Jason is having problems walking, sitting and communicating his thought.  I said to Jason today if you can understand me then nod your head.  He responded with a nod.  I asked him if he knew how much I loved him?....  He nodded yes.  I told him I would never leave his side no matter what....Jason nodded yes.  And then I told him how lucky i was to be able to take care of him.... he nodded yes.  I asked him if he wanted to continue this fight?.....he nodded yes.  And then I gave him a kiss and an extra hug.  I said I would be here to fight along with him.  If he can't walk, I will try to pick him up.  If he can't sit, I will let him lean on me, and if he can't talk, then I will be his voice.  I Love you Jason Chmel with all my heart.  I would do anything for you.
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08/10/2013
by Joyce Ruisi Chmel

Jason's had a great day yesterday.  He engaged in a lot of conversations.
He went and got icecream with Marissa.  She also took him to the Giant Super Market.  Afterwards, they went for a nice walk around their house.  He even put the clean wet clothes in the dryer.  We cherish the good days!!!!!


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08/08/2013
by Joyce Ruisi Chmel
Jason is home now with Marissa and his two boys.  The nurses and therapist our coming to his house to help aide him and get stronger.    At the end of the month he will be doing out-patient rehab.  In about 3 weeks, a port will be put in, so Jason can recieve chemotherapy and Avastin.  He will have to go every two weeks for his treatments.
Jason has a lot of neurological deficits, but he still has a positive attitude.  He enjoys spending as much time as he can with his family.  With the help of her family and friends, Marissa is staying strong and proudly continues to be Jason's rock.  She says it is an HONOR to take care of Jason because, he would do the same for her or any of his family and friends.
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07/30/2013
by Joyce Ruisi Chmel
As of July 24,2013 Jason has been staying in a rehab facility that handles brain trauma injuries.  Everyday Jason works with a team of professionals; occupational, physical and speech therapist, who help him to have a better quality of life.  Jason will be coming home on August 2, but he will need constant supervision and care.
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