Jase Flood's Fundraisor

$3,693raised of $2,500 goal
100%

Organizer: Nicole Kennedy, Ashley Hyland, & Shannon Nichols Beneficiary: Kathryn Ritterson on behalf of Jase Flood

This fundraiser is closed

Jase Flood born on December 10 2012 was diagnosed with Lobar holoprosencephaly a rare congenital brain malformation in which there is failure of complete separation of the two hemispheres and failure of transverse cleavage into diencephalon and telencephalon. This birth defect occurs soon after conception. It has a prevalence of 1 in 250 during early embryo development, and 1 in 10,000 to 1 in 20,000 at term.  In most cases of holoprosencephaly, the malformations are so severe that babies die before birth. 


Luckily Jase was born alive and spent only one month in the NICU at St. Christopher's Hospital before coming home to his loving mother (KC), father (Joey), brother (Billy), and sister (Kylie). Since his coming home Jase and his family have experienced a multitude of challenges... One challenge is Jase having significant motor dysfunction. I.e.: Only having motor function of hands and arms; possibly never being able to crawl, walk or utter a word.  With the loving family he has they made sure to take any extremities needed for Jase to have physical, occupational, and speech therapy. Sometimes both parents had to miss days of work to make multiple trips to the hospital for check ups, medications, therapy appointments, and sleep studies.


Still giving their all to Jase they had much more challenges arise. Jase was soon diagnosed with developmental delay, mental retardation, and a developmental issue with his thyroid. Along with these sad findings Jase was declared blind and hearing impaired. Still his family continues to spend their lives catering to Jases' every need to help with his everyday development in life. With many happy moments in between such as Jase's first Halloween, first Birthday, first experience in a swimming pool, acceptance into the school of the blind and his first Christmas at home with his family it seems this adorable child and his family can't catch a break.


It is now one year and three months later since the time Jase was in the ICU at St.Christopher's Hospital and I am sad to say he is back in the ICU struggling to survive. On March 4th sometime around 6am Jase was driven to St. Christopher’s hospital by his father Joey for a 104 fever. After arriving at the hospital Jase's fever went up to 106 and wasn't breathing to well so the doctors wanted to put in a breathing tube  but before they could Jase stopped breathing, and his heart stopped beating. Jase was quickly given CPR for 35 minutes before he came back to life. Only 10 minutes after reviving him Jases’ heart stopped again.  CPR was once again administered this time for 45 minutes. The doctors were about to give up except for this one doctor who refused to give up  and said he just wanted to try for  few more minutes. 


Thankfully for that doctor’s faith Jase got a heartbeat back and was able to have a breathing tube put in. After this second revival Jase was immediately put on Life support and placed in the ICU. Jase's family was told he would most likely not make it through the night. Throughout the day the doctors placed a tube in Jase’s neck to administer medication only to have Jase start excreting blood through that very same tube. To keep Jase from bleeding out the doctors had to drill holes in the bones in both the hands and feet of Jase to run tubes for blood transfusion. The only bit of good news is that after being dead for so long Jase is not completely brain dead. It's a miracle that he is still here with us even days after the doctors stated he wouldn’t make it through the night. This little man and his family need all of the support they can get to get through this. In awful times like this most cannot function nor even attempt leaving your child’s side. 

For these very reasons loving family members close to Jase and his family are helping to raise money to help with expenses. Jases' parents simply just can’t bear to leave his side in fear of the worst. So please if you can contribute to this much needed cause it would be greatly appreciated. Every little bit counts! To all individuals who contribute we can’t say THANK YOU ENOUGH!

Updates

Updates

04/06/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Sorry for the lack of updates lately... Jase's Great Uncle Joey Groome passed away last week. He was an amazing man, who actually was an extremely vital part of Jase's fundraiser and beef and beer. A truly beautiful soul that will be missed. He is now watching over Jase and he's now helping him along. Jase has been doing very well, remaining off the respirator. Mom was holding him yesterday as he was wide awake and moving around. Keep fighting baby boy!

The beef and beer is this Friday, April 11th. There are only a couple tickets left to those who would be interested in coming.  

*Thank you for everyone keeping Jase in your thoughts and prayers <3


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03/31/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Jase was a little sick over the weekend, but the doctors turned the respirator down and he is breathing on his own!! He's SO STRONG! Keep holding on baby boy!

Thank you to everyone donating and praying for our Jase <3
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03/30/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Today Jase is wide awake! Such a strong boy! The plan is to try and take him off the respirator tomorrow... Keep on praying for our beautiful baby boy!

Just a reminder... We are having the Beef and Beer April 11th for Jase. Tickets are $30 for one or $50 for two. 
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03/30/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Today Jase is wide awake! Such a strong boy! The plan is to try and take him off the respirator tomorrow... Keep on praying for our beautiful baby boy!

Just a reminder... We are having the Beef and Beer April 11th for Jase. Tickets are $30 for one or $50 for two. 
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03/25/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Last night was not the best, but Jase is not giving up. *Tonight at 10PM Jase's story will be on FOX 29 news. Tune in if you are not busy!

Keep on praying for our baby boy!
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03/25/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Follow the link to FOX 29 story on our beautiful baby boy... http://www.myfoxphilly.com/story/25061885/local-15-month-old-boy-battling-rare-brain-condition?autoStart=true&topVideoCatNo=default&clipId=9980175#.UzFowKN-wPQ.facebook

Keep Jase in your prayers <3
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03/24/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Last night was not the best, but Jase is not giving up. *Tonight at 10PM Jase's story will be on FOX 29 news. Tune in if you are not busy!

Keep on praying for our baby boy!
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03/24/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Last night was not the best, but Jase is not giving up. *Tonight at 10PM Jase's story will be on FOX 29 news. Tune in if you are not busy!

Keep on praying for our baby boy!
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03/23/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Mom, Dad, and Mommom got to hold Jase for the first time in three weeks :) He is NOT giving up! 

Thank you to everyone praying and keeping Jase in your thoughts! We appreciate it more than you know <3
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03/22/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Great update yesterday... the hospital turned the respirator down a lot and Jase was breathing mostly by himself :) He's such a strong boy!! He is also fighting bacterial meningitis now though. 

Keep praying for our handsome baby boy <3 Thank you to everyone!!
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03/22/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Great update yesterday... the hospital turned the respirator down a lot and Jase was breathing mostly by himself :) He's such a strong boy!! He is also fighting bacterial meningitis now though. 

Keep praying for our handsome baby boy <3 Thank you to everyone!!
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03/20/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Mom & Dad were at the hospital till late 11 ish last nite and Jase seemed okay. Sometime after, his blood clogged the dialysis machine & it was shut down for 8 hours. Now they think he has 2 more infections. One from the cath & maybe a blood or brain infection :( Of course mom blames herself cause she wasn't there because she had to go home to sleep so she could go to work. I know we all have a hard time going to work but can you image going when your baby is at deaths door?

*Keep praying for our baby boy <3

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03/18/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Been a while since an update, sorry... Latest is our handsome boy is still on the respirator, feeding tube, and catheter, and patch on his chest for blood pressure. On Sunday Jase was put on dialysis. BUT, his eyes have been opening more and more lately. Mom is returning to work this week, because she has to. There is going to be a meeting with the doctors this week also. Keep praying for our baby boy! Thanks so much everyone!
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03/11/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Jase report: Staph infection, Pneumonia,respirator ,feeding tube ...everything else the same
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03/09/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
March 9th

Jase Report he has a staph infection from putting in breathing tube. He also has pneumonia in his chest. Good news they turned down the breathing tube again and upend his feeding. He is not as swollen and is opening his eyes and moving his arms a little. One step back two steps forward!!!
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03/09/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
Match 8th

Here is today's Jase Report! He isn't peeing so they put a catheter in him and up his med to make him pee. On a better note, they turned down the breathing tube just a little. Mom is not doing real good right now, I think the stress is getting to her!
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03/09/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols

March 7th

Jase report-- same as yesterday-- breathing tube and feeding tube-- will reevaluate tomorrow to see if anything more needs to be done


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03/09/2014
by Nicole Kennedy, Ashley Hyland, & Shannon Nichols
MARCH 6th

Here is the Jase report!!! Everything is the same today. They are just letting him tell them what he needs. They all keep saying he shouldn't be alive. They can't believe he is still here & how far he has come already!! God works in mysterious ways!!!
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