Our niece Kenzie was just recently diagnosed with a rare genetic disorder called cystinosis. Being that she is 2 years old and happy all the time the diagnosis came as a major shock to her parents Shawn and Katie. Kenzie is one of the only people in the state of Wisconsin that has this disorder so we are trying to raise money to allow Kenzie and her parents to go to a cystosis conference and learn more about it. Kenzie will need to be on medication for the rest of her life and there is no cure for cystinosis yet. She may eventually have to have a kidney transplant and will have a lifelong battle. Shawn and Katie also have a 4 year old daughter Brielle.
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