Help Will continue his recovery from an Anoxic Brain Injury

$15,289raised of $100,000 goal
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Organizer: Team Will Beneficiary: Will Gomez & Family

Our son Will was born with a heart disease, Hypertrophic Cardiomyopothy.Will has struggled with HCM his entire life limiting his physical activities and taking multiple medications. After genetic testing was completed and the gene mutation was confirmed, Will was officially diagnosed with Hypertrophic Cardiomyopathy at 2 years old. After research and visits with HCM specialist at Stanford Children's Hospital we were convinced that an AICD should be placed in Will. After months and months of debates it was decided the risk of sugery to place an AICD was greater than the risk of Will having an incident (Cardiac Arrest). Will was an otherwise healthy boy. A very loving, playful, and happy little boy.

     Unfortunately against the odds on October 23, 2013, while at school, Will suffered cardiac arrest. After being airlifted to Children's Hospital Los Angeles and placed on a ventilator, we were informed that Will had gone without oxygen for an extended period of time and had suffered an Anoxic Brain Injury. Will has been hospitalized since October 23, 2013 and our family has been split apart with my wife Anne living with Will at the hospital everyday since October 23.On November 22, 2013 Will had sugery to place an AICD. Will has been at Healthbridge Children's Rehabilitation Hospital since December 20, 2013 and has been making incredible progress. We were told our son would not walk, talk or be able to eat enough calories on his own to be healthy. Will is begining to talk, take some steps and is eating 3 meals a day. Will has a very long road to recovery ahead of him with lots of physical therapy, speech therapy and occupational therapy. We have faith that our boy will recover and have a very good quality of life. Our insurance will only cover so much outpatient therapy once Will is discharged from the hospital and we will need to pay large fees for additional therapy out of our pocket. We want to give Will the best chance at full recovery with intensive rehabilitation.

We truly appreciate any and all support for Will and our family!

Love,

Team Will!
Updates

Updates

10/06/2014
by Team Will
Will is home day 201!

I also wanted to let everyone know that October is National Sudden Cardia Arrest Month. Imagine a world where every school has a portable Automatic External Defibrilator (AED) on site with staff trained to use it? It could save a life. 

Zoll Medical Corporation the manufacturer of the AED Plus device is having a contest on there website this month. No obligation at all just simply register and you will entered to win the AED PLUS to donate to a charitable organization in your community. We would be so thankful if you could register for this contest in honor of Will donating the device to (Will's school) New Horizons Child Development Center - Parents Auxilary. You just never know when something tragic could happen. Thanks to prepared and brave teachers and a parent our little boy is still with us. Please contact us if you have any questions. 

www.zoll.com 
Contest button is on the bottom of the home page.

New Horizons Child Development Center - Parents Auxilary


Love,

Team Will!





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10/06/2014
by Team Will
Will is home day 201!

Hello everyone, it has been a very long time since our last update.We are very sorry for that. It has been very busy with Will's schedule between therapy and school he is busy Monday through Friday. Anne and I are both back to work and we are still working on getting back to our normal. 

On September 2, 2014 Will celebrated his 5th birthday! What a huge milestone for so many reasons. It was a very emotional time for us because we are so thankful that Will is here with us.He is asuch a fighter!

Will and Paige are both back to school for the new school year. Paige is in 3rd grade now and Will has moved up to a new class. 

Will is continuing to make huge strides in his recovery. He is doing so well that we have reduced his therapy from 3 days a week 3 hours each day to 2 days a week 3 hours each day. Will goes to school 3 days now staying the entire 4 hours. 

It was a busy summer with lots of doctors appointments. We also took will to Minneapolis, Minnesota to visit Dr. Barry Maron the world expert in Hypertrophic Cardiomyopathy. It was a good visit with a doctor that has more experience and has more patients with Hypertrophic Cardiomyopathy than any other doctor in the world. We talked for hours with him and other medical staff and the what we learned ws that "Will has the most aggressive case of HCM that I have seen" to quote Dr. Maron. Good news is that Will has a very strong team of specialist including Dr. Maron handling his care. We have so much hope that Will is going to continue to do very well. Between his amazing therapist and his amazing school filled with amazing techers and friends and familes, Will is destined for greatness!

We coming up on one year October 23, 2013 from his cardiac arrest and that brings up an array of emotions for myself, Anne, Paige, Will, friends and family. As we have said to many of you in person and others through this site, we would not have madei t this far without you and your continued love and prayers. Will has 500 plus students praying for him everyday at Paiges school Holy Trinity as they have prayed out loud for him at morning prayer since since his cardiac arrest. The school principal promised me that Will would be prayed for at morning prayer until we decided to end it. Dr.Wiley has been so supportivein many different ways and we cannot express ourlove and thanks enough to her. 

I have posted a video from last Thursday at therapy. Please enjoy this video as Will continues to beat the odds. I have said this before if you are ever feeling sad or down on yourself just watch these videos. They will absolutely make you smile again!

I promise to have updates more frequently form now on.

Love,

Team Will!

Go Irish!



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05/22/2014
by Team Will
5/21/2014

Will is home day 63!

I am also posting some new pictures of Will. He has been a busy boy with therapy 3 days a week, 3 hours each day. Watching his daily progerss is amazing. The best part is knowing how hard he works and how he does it with the biggest smile and the loudest laugh! We cannot say it enough, Will is truly a miracle!

Love,

Team Will!
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05/21/2014
by Team Will
5/21/2014

Will is home day 63!

Will is doing great. He is happy to be home with his family. Will was able to participate in the Mother's Day program at his school. This was important for three reasons. The first reason is he is healthy enough to be at school. Second is it was the Mother's Day program and what a great gift for his amazing mommy! The third reason is it was a goal set a long time ago to beat the odds and get him back to school. 

New Horizons has been so supportive of Will and our family. He is so loved by his teachers and friends. He absolutely loves the time he has been spending at school. 

On another note I am posting a copy of a letter written by Jillian Pasquarella a 4th grader at Holy Trinity School and daughter of our very good friends Clem & Tami. When Tami presented this letter to me I could not help but begin to cry. This was 100% from her heart. What this letter contains is further proof of the great people we have in our life. Jillian is an amazing girl, being raised by amazing parents. Please enjoy reading this letter, I know it will bring tears and a smile to everyones face. Thank you Jillian!

I have posted the letter in the gallery section just clickonit to read. 


Love,

Team Will!





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04/28/2014
by Team Will
4/28/2014

Will is home day 40!

Hello friends and family. As most of you know Will has been working really hard with his outpatient therapy at HealthBridge. We cannot say enough great things about his therapy team and Will's amazing hard work. We posted a video that I took about 30 minutes ago. The results of the hard work of an amazing boy that will not give up his fight to recover. We cannot tell you how many doctors see him and say "Wow! He is a miracle"! This video shows exactly that. Whenever your day is tough and you want to give up just take a look at this video, it will bring a smile to your face. 

Love,

Team Will!
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04/28/2014
by Team Will
4/28/2014

Day 40 Will is home!

Our aplogies for the delay in uploading an update. We have been very busy with Will's outpatient therapy back at HealthBridge. 

On April 2,2014 Will visited his friends and teachers at New Horizons Child Development Center. Will had an amazing morning with his friends and teachers. He sat on the rug and sang songs and played with blocks. His friends were so excited to see him and he was so excited to see them. As you may have already noticed we posted some great pictures of this day. 

Love,

Team Will!
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03/27/2014
by Team Will
3/27/2014

Will is home day 8!

We had some technical dificulty with the video. We are good now and the video is posted. This video of Will walking our of HealthBridgeis sosignificant. Please watch and enjoy. We also posted some pictures of Will on his last day with some of his nurses and therapist. 

Love,

Team Will!
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03/25/2014
by Team Will
3/24/2014

Will is home day 5!

On March 20th Will came home.Will had a very nice goodbye from his friends at HealthBridge. Lots of cheering, clapping and tears of joy as he walked out of HealthBridge with a little help from his friend Sandra. Will had a great exprience at HealthBridge. He worked really hard and his therapist and nurses worked really hard with him. The entire staff at HealthBridge believed in him just like we do and showed it everyday. We wrote a letter for everyone at HealthBridge which we gave them on Will's last day. We have posted a copy of that letter for everyone to read. We have also posted a video of Will walking out of HealthBridge. 

We are at the end of day 5 and could not be happier. Will is so excited to be home. He is enjoying playing with Paige and his toys. It is such an amazing feeling having our family back together again. Will has several therapy evaluations this week and hopfully will be back to a consistant therapy schedule next week. One part of Will's journey to complete recovery has ended. He has now begun the second part of a long road to full recovery.

Will has come so far from October 23, 2013. All of your support and prayers have been amazing. Our family truly thanks you for your continued love and support. Please continue to pray for Will and cheer him on as he continues to fight for full recovery. We will post updates throughout Will's ongoing therapy so please stand by for the next update!

Love 

Team Will!



Letter to HealthBridge

3/19/14

Dear Friends at HealthBridge,

      As parents we reflect on our time at HealthBridge and the first thing that comes to mind is what a great place. What an amazing place for healing. Not just for healing for Will but healing for our family. We were skeptical at first because we were scared, upset and still trying to understand why our boy had to go through this? We were also very optimistic because we know our boy and we know how smart and determined he is. Our optimism was keeping us going, but we needed a great team of therapist at HealthBridge to want to work hard with Will in therapy and a great nursing staff to help keep Will and his family positive. How lucky could we be, we had an amazing team of therapist and an amazing team of nurses and support staff.

     When Will walks out of here on Thursday we will have been at HealthBridge for 13 weeks. In those 13 weeks there has been tears all around. Tears in therapy, tears in the shower and tears in room #7. But through it all the staff at HealthBridge stood side by side with us and fought to help our boy and our family heal. Although the circumstances that have brought us to HealthBridge are something we do not wish on any child and family, we are forever blessed with friendships and bonds that will last forever.

      We always said what a special boy we have and how lucky we are. Those of you that spent these weeks with us through the rough days and the bright days have been touched in a special way by our boy. You see the innocence and joy that is so genuine despite the pain he has endured for the last 5 months. A very special person to our family said to us a couple of days ago how much she loves our boy and how she knows he is here for something special in life. We not only agree with her but we see it already. We know that those of you that have interacted with Will in even the smallest way have been touched by his heart and his love of life.

      Leaving HealthBridge on Thursday is a day we have been looking forward to for so long. We are so happy that we will have our family back together again. I could type for hours about how we feel about our time at HealthBridge and what wonderful people we have met and have seen us in our most vulnerable time but have maintained a professional but absolutely compassionate face no matter what the circumstances were. For these reasons we thank you all from the bottom of our heart. Thank you for being scared when Will growled at you in the hall. Thank you for understanding when Will screamed and cried because he was scared. Thank you for putting up with me when I was upset and barking at the nurses. Thank you for helping Anne while she lived at HealthBridge with Will. Thank you for welcoming Paige and helping her through this time by allowing her to be herself as silly as she is. Thank you for fighting with us. Thank you for believing in Will. Most of all thank you for loving Will!

     All of you will always have a special place in our heart. I know people always say all the cliché things like keep in touch and no one ever does. Fortunately, you guys are stuck with us. As I said before we all know that Will is here for something greater than we all can imagine. I know Will has made so many people proud of his courage and achievements already. But someday you will be saying “Hey that is Will. That amazing boy from room #7!”We are truly blessed and thankful for having all of you in our lives.

Love,

The Gomez Family






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03/15/2014
by Team Will
Day 144 in the hospital
3/14/2014

Will had a big week. Will has been eating on his own for about 7 weeks now. On Thursday, Will had his G-Tube removed! This was a significant moment for him considering we were told he might not ever eat on his own again. Will was so excited to get the G-Tube removed. He told the nurse practitioner, "Tube out please." He was able to throw it in the garbage himself in celebration (I posted a video of Will throwing the G-Tube in the garbage). 

Will continues to work very hard with walking. He is moving faster and initiating steps with both legs. This week, Will has started to pick up food with his right hand and transfer it to his left hand. Will is also working very hard in speech and has started consistantly saying two and three word phrases.

Due to the anoxic arain injury Will has some vison impairment. His vision is improving but we are still unsure how much he is able to see. 

Thank you all for your continued support and prayers for Will!

Please take a look at the new pictures and video we posted.


Love,


Team Will!


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03/06/2014
by Team Will
Day 135 in the hospital
3/6/2014

Will is feeling much better,no more fevers. Will is continuing to work hard in therapy and really having fun. His walking has progressed so much in the last few days, taking more steps and moving faster and faster everyday. Will had the chance to go into the pool two days this week and really had a great time splashing and kicking in the water.

We have added a great video of Will on his daily walk scoring goals for the Kings! We also added a few more pictures. 

We hope you enjoy seeing Will's continued progress through pictures, videos and our updates.

Thank you so much for your continued support for Will, we really enjoy reading all of the nice messages. Thank you so much for continued prayers.

Love,

Team Will!
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03/03/2014
by Team Will
Day 132 in the hospital
3/3/2014

Will has had a rough few days not feeling well and having fevers. Although Will did not feel great he was a trooper and worked hard through his therapy on Saturday. Will has been playing a game with a big red ball in physical therapy. When he is practicing walking back to his room, he kicks the red ball and says goal for the Kings!

Take a look at the new pictures and videos we posted tonight.

The response to Will's page has been amazing! We truly thank everyone for continued support and prayers for Will!

Love,

Team Will!



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02/27/2014
by Team Will

Day 128 in the hospital.
2/27/2014
Will is making great progress with his therapy. New words and phrases everyday in speech. Heis working really hard on his walking in physical therapy. Occupational therapy is going great. He is really starting to use his right hard more and more everyday He has a great team of therapist at Health Bridge that really care about Will and his continued progress. Will is without a doubt the toughest little boy, he has been through so much in 4 years, but he always has a smile for everyone. He is loved by everyone at Health Bridge. 

Love,

Team Will!!

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