Our son Will was born with a heart disease, Hypertrophic Cardiomyopothy.Will has struggled with HCM his entire life limiting his physical activities and taking multiple medications. After genetic testing was completed and the gene mutation was confirmed, Will was officially diagnosed with Hypertrophic Cardiomyopathy at 2 years old. After research and visits with HCM specialist at Stanford Children's Hospital we were convinced that an AICD should be placed in Will. After months and months of debates it was decided the risk of sugery to place an AICD was greater than the risk of Will having an incident (Cardiac Arrest). Will was an otherwise healthy boy. A very loving, playful, and happy little boy.
Unfortunately against the odds on October 23, 2013, while at school, Will suffered cardiac arrest. After being airlifted to Children's Hospital Los Angeles and placed on a ventilator, we were informed that Will had gone without oxygen for an extended period of time and had suffered an Anoxic Brain Injury. Will has been hospitalized since October 23, 2013 and our family has been split apart with my wife Anne living with Will at the hospital everyday since October 23.On November 22, 2013 Will had sugery to place an AICD. Will has been at Healthbridge Children's Rehabilitation Hospital since December 20, 2013 and has been making incredible progress. We were told our son would not walk, talk or be able to eat enough calories on his own to be healthy. Will is begining to talk, take some steps and is eating 3 meals a day. Will has a very long road to recovery ahead of him with lots of physical therapy, speech therapy and occupational therapy. We have faith that our boy will recover and have a very good quality of life. Our insurance will only cover so much outpatient therapy once Will is discharged from the hospital and we will need to pay large fees for additional therapy out of our pocket. We want to give Will the best chance at full recovery with intensive rehabilitation.
We truly appreciate any and all support for Will and our family!