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Hope for Jenna Brown

$7,438raised of $7,000 goal
106%

Organizer: Jeannette (Grandmother) Beneficiary: Jenna Lei Brown

From our family to you, we are asking for help to raise money for the next step in Jenna's medical care.

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Fundraiser Details

Jenna’s story…

Saturday, June 2, 2012, was a normal day for our family.  The weather was sunny and warm, so we took the girls to the park to play.   The ice cream truck came by, so we bought the girls an ice cream cone.   My granddaughter Jenna, at six years old, could hardly hold her ice cream because her hands were shaking severely.  We were frightened.  Jenna spent the next four hours in the emergency room.  Physicians ran blood work, consulted with a Pediatric Neurologist in Oklahoma City, and warned us of the symptoms of seizures for when she went home. 

For the last year, Jenna(now seven years old) has been under the care of a Pediatric Neurologist, a Genetic Specialist, and an Ophthalmologist, all of whom are located in Tulsa, Oklahoma, which means Jenna and her mother travel to Tulsa for Jenna's medical appointments.  Jenna has had multiple tests to include: brain MRIs, EKGs, Spinal Tap, EEGs, many blood tests, CT scans, abdominal CT scans, and two specialized eye examinations (for blurred vision episodes and daily headaches).  Results of all tests done on Jenna have not given an answer as to why she is having these tremors. 

Jenna’s hand/arm tremors continue every day; she has good days and bad days.  Jenna is on three different types of medications, and she takes a total of seven pills a day.  Since all the tests have not come up with an answer, we are trying to raise money for the next step in Jenna’s medical care.  Jenna needs to have a full genetic workup.  Our problem is that Jenna’s medical insurance will not cover the expense of this medical test.

UPDATE: July 26, 2013:  Jenna had to get a new genetic specialist as the one she was seeing in Tulsa, Oklahoma, left the practice.  She is now seeing a genetic specialist at OU Children's Hospital in Oklahoma City. 

UPDATE: September 6, 2013: Jenna turned 8 years old.  Happy Birthday Jenna!

UPDATE: October, 27, 2013: Jenna has been seeing a pediatric eye specialist in Tulsa for the past year.  Jenna got reading glasses.  She only needs to wear them when reading or writing.

UPDATE: November 23, 2013:  Jenna has been seeing a local chiropractor, who uses the "activator" method, but we have seen no change in her tremors.  Jenna saw her genetic doctor on November 8, 2013.  She said Jenna is looking good, and Jenna had some blood drawn for some more mitochondrial testing.   Jenna saw her neurologist on November 12, 2013, and she has been referred to a pediatric orthopaedic specialist in Tulsa regarding her spinal issues. Both genetic specialist and neurologist agreed that the next step is a full genetic workup.

UPDATE:  March 28, 2014:  Jenna had her blood drawn for exome Exome Sequencing.  Results will take 16 weeks.

From our family to you, we are asking for help.  No matter how little you can help, all help will be truly appreciated!  

If you would like to contribute online, please click on "Give Now."  

If you would like to make a donation to Jenna's fundraiser, but you do not have a PayPal account, or you do not want to make the donation online, please click on "Contact the Organizer" and send a private email to Jeannette(fundraiser organizer).  All anonymous donations will be kept anonymous.

Thank you!


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Updates

Updates

03/31/2014
by Jeannette (Grandmother)
March 28, 2014:  Jenna had her blood draw for Exome Sequencing test.  Results will take 16 weeks.




02/18/2014
by Jeannette (Grandmother)
Jenna has an appointment with her genetic specialist on March 28, 2014, to proceed with the genetic workup. 

Also, we are sending hair samples to a lab in Phoenix for analysis, checking for deficiencies and exposure to any kind of metals.  Jenna was tested for deficiencies in the beginning, but someone recommended a lab in Phoenix.  The lab usually does not take new clients, but because of this person (a patient), they are going to test Jenna's hair.  It isn't going to cost us much, so that is why we went ahead with this testing.




02/13/2014
by Jeannette (Grandmother)

"Hope for Jenna" benefit concert is Saturday, February 15th, at The Tumbleweed (Lakeview and Country Club Road) in Stillwater, Oklahoma.  Door open at 8 pm.

Hope to see you there! 






11/23/2013
by Jeannette (Grandmother)
Thank you Gerrie for your generous $500.00 donation.




11/23/2013
by Jeannette (Grandmother)
Grace Baptist Church has a donation saved up of $2340.  We are very thankful to you all.




09/22/2013
by Jeannette (Grandmother)
Jenna saw her genetic physician on September 6th, and the mitochondrial testing they did all came back normal.  Jenna had blood drawn for another round of lab testing.  This genetic specialist has also come to the decision that a full genetic workup we are fundraising for is necessary.

Jenna started seeing a chiropractor on September 11th, and is being treated with the activator method.  We had a few recommendations to consult with a chiropractor, so we decided to try this.  So far we have not seen any change in her tremors.




09/22/2013
by Jeannette (Grandmother)
Thank you Heaven for your $50 cash donation.




09/06/2013
by Jeannette (Grandmother)
Jenna turned 8 years old today, September 6th. 

Happy Birthday Jenna!  We love you so much!




09/06/2013
by Jeannette (Grandmother)

Jenna's story was on FOX25 news Oklahoma City on 9/4/13:

http://www.okcfox.com/story/23343447/stillwater-girls-mystery-illness-stumps-doctors






09/06/2013
by Jeannette (Grandmother)
Jenna's story was in our local newspaper, the Stillwater Newspress, on 9/3/13:

http://www.stwnewspress.com/local/x1253335821/Mother-I-dont-know-what-is-wrong-with-my-daughter




08/24/2013
by Jeannette (Grandmother)
Jenna has had to get a new genetic doctor.  The one she was seeing in Tulsa, Oklahoma, has left the practice.  Jenna is now seeing a genetic doctor at OU Children's Hospital in Oklahoma City.  The new doctor is doing more testing, the most recent was mitochondrial testing.  Please keep Jenna in your thoughts and prayers.  We thank you all for your support. 




07/31/2013
by Jeannette (Grandmother)
We have collected $30 in a donation collection box at a health nutrition store here in Stillwater. :)




07/01/2013
by Jeannette (Grandmother)
We want to thank everyone for their online contributions, and the people who have sent me a personal check.   Thank you so much!




07/01/2013
by Jeannette (Grandmother)
Thank you Phylis for your $100 check donation. 




06/17/2013
by Jeannette (Grandmother)

Thank you Lori for the $100 check donation.






06/10/2013
by Jeannette (Grandmother)

Thank you Mary for the $50.00 check donation!






06/02/2013
by Jeannette (Grandmother)
Thank you to Chris Sheldon and Jessica Gerringer for your generous $400 cash donation.   Thanks so much!




05/29/2013
by Jeannette (Grandmother)
Thank you to Grandma Minda and Papa Steve for their generous $500.00 check donation.


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