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Help Ben Regain Health and Be Cancer-Free

$25,910raised of $42,937 goal
60%

Organizer: Carrie Sayer Beneficiary: Ben Sayer

Community makes anything possible and surmountable. Please help our family provide Ben what he needs to be healthy, well, and cancer-free. Together we can create a miracle.

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Fundraiser Details

Dear Friend,

My husband has cancer.

Ben is our life-loving, compassionate, generous, dear husband, father, and son. He means the world to us, and now he needs our help.

On October 1, Ben had urgent surgery to have a tumor removed. It turns out the tumor is malignant.

My beloved Ben has bladder cancer.

We are a family who love to work hard, play hard, create, connect, discover and encourage each other and everyone to follow their dreams. To live out your passions. To express yourselves and have a total blast in the process. We love life and we love sharing that joy with everybody.

Ben has always put family first. He is a self-starting entrepreneur who works from home so our young family can be together as much as possible. I am a self-employed drama coach for high school students. We have a modest income that covers usual expenses. 

But these enormous hospital bills are staggering, and we cannot bear the weight alone.

Our health insurance coverage begins January 1, 2014. Like millions of Americans, we have planned to sign up under the Affordable Care Act for benefits. The marketplace opened October 1, which ironically was the day of Ben’s cancer surgery.

We asked Ben’s doctor if his surgery could be put off until January. “Absolutely not,” was the answer. We went ahead, knowing it could be the difference between life and death.

Now we face cancer treatments and mounting bills not only for the urgent testing and surgery, but for whatever lies ahead that we must do to save Ben’s life.

Please help us if you can. We need you. Please give whatever you can to help us pay for these massive medical bills.

Together we can create a miracle.

Thank you and God bless.

With deep love and gratitude,

Carrie, Ben, Logan and Paige Sayer
7570 2nd Street
Dexter, MI 48130

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Updates

Updates

03/25/2014
by Carrie Sayer
Dear Friends,

We learned last week that Ben's contract will not be renewed beyond June 30, 2014. This has been our main source of income. 

So, we are feeling a sense of urgency and are turning to our friends once again to please help us make it through this scary and challenging time in our lives.

We are cautiously optimistic about Ben's health. Ben had an appointment with his doctor last week. They are refining all of the healthy things that need to go in, and identifying all of the toxic things (i.e., heavy metals) that need to come out.

Ben's liver is not functioning properly yet. His immune system is not functioning properly yet. His body is struggling to effectively get rid of toxins. Ben now takes over 100 supplements each day. Now on a new regimen, he will have a follow-up appointment in three months to evaluate his progress. We hope his body will improve its ability to 
become a healthy system.

All this to do everything in our power to reduce the probability of cancer recurring.

Please help if you can. Prayers, sharing our updated news, contributing to Ben's care, sending love and good wishes. All of it helps. We deeply appreciate everything you do.

God bless,
Carrie, Ben, Logan and Paige - See more at: http://www.youcaring.com/medical-fundraiser/help-ben-regain-health-and-be-cancer-free/93345#sthash.aKbEFABf.dpuf




02/24/2014
by Carrie Sayer
Dear Friends,

TODAY'S CYSTOSCOPY REPORT: NO EVIDENCE OF TUMORS.

They will also be testing Ben's urine for evidence of cancer cells. Results...soon.

Next cystoscopy: May 22, 2014. Protocol: a cystoscopy every three months for two years. Then, a cystoscopy every six months for two years. Then, one every year.

"Cystoscopy and urine cytology — Repeat cystoscopy and urine cytology testing are recommended for surveillance, beginning three months after treatment ends. If there are no signs of recurrence, cystoscopy and urine testing are usually recommended every three to six months for four years, and then once per year."

Please keep sending love, prayers, support. We feel very loved and hopeful.
Ben, Carrie, Logan and Paige 




02/16/2014
by Carrie Sayer
Dear Friends,

Hello! 

Well, weather happened, and Ben's cystoscopy was postponed to this Wednesday, February 19, in the morning.

We are of course praying for a "cancer-free" result.

Stay tuned for more news. Please help us spread the word. 

with love and blessings,
Carrie, Ben, Logan and Paige




02/01/2014
by Carrie Sayer
Dear Friends,

Ben will have a cystoscopy this Wednesday, February 5, to detect the presence or absence of cancer cells in the walls of his bladder.

And hey! February 5 is the anniversary of our wedding! We've traveled around the sun together nine trips as husband and wife.

In sickness and in health.

More news soon.

Please keep sharing. We still have nearly $20,000 to raise. We need your help.

love,
Carrie, Ben, Logan and Paige




01/15/2014
by Carrie Sayer
Dear Friends,

Hello! Ben went to Canton this morning for a killer cell test and lymphocyte panel. More tests to come so we can figure out the nutritional imbalance, hormonal imbalance, and or toxicity that prevented Ben's body from destroying the bladder cancer as it normally should.

Yesterday was Ben's appointment with Dr. Rick Ng, the holistic medicine physician who specializes in treating cancer patients.

Moving forward to getting Ben healthy and cancer-free!

We are over halfway to our goal for covering Ben's care thus far. Thank you for your continued support, prayers, and sharing our updates with others who may wish to help!

much love and appreciation, 
Carrie, Ben, Logan and Paige







01/02/2014
by Carrie Sayer
Dear Friends,

Hello!

Happy New Year!

Ben is feeling well. These past two weeks have been quiet and healing for him and our family.

Next: Ben has an appointment with a doctor who specializes in treating cancer patients on January 14. They will complete nutritional testing, among other things. Ben will be able to gain information that empowers him to dial in any nutritional deficits that can be corrected.

By removing toxins and putting in only the healthiest foods and supplements, Ben is doing everything in his power to be healthy and cancer-free. His first course of BCG has been completed.

In one month, Ben will receive a follow-up cycstoscopy to test for the presence or absence of cancer in his bladder.

These are peaceful times. We feel your love and appreciate you so much.

We're halfway to our financial goal. Please help spread the word to others who may wish to contribute to Ben's care.

P.S. Yes! Our insurance coverage began January 1. We still need to raise enough to pay for incurred medical costs upwards of $42,000.

love,
Carrie, Ben, Logan and Paige Sayer
7570 2nd St.
Dexter, MI 48130




12/27/2013
by Carrie Sayer
The Power of Love

Dear Friends,

The outpouring of love and support from you is incredible. We feel deeply nourished by your love. 

We are enjoying a quiet couple of weeks over the holidays. It's bliss. Lots of time for reading, playing, napping, recuperating and rejuvenating.

Each of you is a blessing in our lives. We love you and appreciate you very much.

Our dear friend, Scott Noelle, wrote a beautiful and passionate article I'd like to share with you:

http://archive.aweber.com/dailygroove/7j4Xn/h/_Can_I_be_Uncle_Billy_Daily.htm

May all the love and support you are pouring out come back to you in great abundance.

love,
Carrie, Ben, Logan and Paige 




12/23/2013
by Carrie Sayer
Dear Friends, 

Merry Christmas!

Ben received his sixth (of six) BCG instillations today. Whew! The sixth step in this first phase of treatment is done.

Next: Ben will have a cystoscopy in six weeks to check the results of the BCG treatment, and to evaluate the lining of his bladder for the continued presence of cancer.

In the meantime, we are enjoying peaceful, quality family time over the holidays.

God bless you and yours. 

We still need to raise over $20,000. Please continue to share our updates, let friends know that Ben is remaining deeply positive. Please share this link with others who may wish to contribute to Ben's care.

With love and gratitude, and with hearts full of holiday joy,

Carrie, Ben, Logan and Paige

7570 2nd St.
Dexter, MI 48130




12/20/2013
by Carrie Sayer
Dear Friends,

Fresh, organic fruits and veggies? Check.

Juicing and blenderizing? Check.

Healthy vitamins and supplements? Check.

Completing week 6 of 6 for BCG treatment? Almost check (next Monday!).

Tons of research, reflection, meditation, prayer, hugs, and so much more.

We have been doing everything we can to get Ben to a healthy state. I love him so much. He is brave, strong, positive, searching, striving, and amazing.

We look forward to lots of family time over the next two weeks, with the holiday break. 

Please keep it all flowing: the positive vibes, prayers, spreading the news, sharing the love. We deeply appreciate you.

Much love to you,
Carrie, Ben, Logan and Paige




12/13/2013
by Carrie Sayer
Ben takes 90 supplement pills a day.

Wow.

Please help us reach our goal. We've got 12 days til the end of the year.

love,
Carrie, Ben, Logan and Paige




12/09/2013
by Carrie Sayer
Dear Friends,

Today is week 4 of post-surgery BCG treatments.

Praying for a smooth ride.

Ben is upbeat, positive, and calm. I feel like that, too, much of the time. Daily life is fun, challenging, frustrating, exciting, tiring, and a gift, a gift, a gift. I cherish every second of it.

sending love in this joyous holiday season,
Carrie, Ben, Logan and Paige




12/07/2013
by Carrie Sayer
Dear Friends,

Whew! We signed up for our health insurance plan this week. It took many tries (government comupter system overloaded, i am guessing), but we were able to get in this time and complete the process!

In the meantime, we are nearly half-way to our goal of raising enough contributions for Ben's care that occurred in 2013.

Please help us continue to expand our community by sharing our story with friends who may wish to contribute and pray. We are all one.

with love and gratitude,
Carrie, Ben, Logan and Paige




12/03/2013
by Carrie Sayer
Dear Friends,

Ben received his third BCG treatment yesterday. Blessedly, the most intense side effect so far this week is fatigue.

He's off for another nap right now. 

It's a quiet, peaceful day at our house. I'm teaching students later, loving snuggle time with Logan and Paige, and praying for a miracle.

We are nearly halfway to our goal. Please reach out to others who may wish to contribute to Ben's care. We have 22 days to the end of the year. I believe as an extended, loving community, we can accomplish anything!

Ben is scheduled to share his cancer survival story at a conference in 2014. Let's help him make it there.

with love and gratitude,
Carrie, Ben, Logan and Paige




11/26/2013
by Carrie Sayer
Dear Friends,

Ben received his second BCG treatment yesterday. Unfortunately, he is feeling quite poorly. 

Side effects from BCG may include:

  • Burning or pain with urination, a sense of needing to urinate often, or urinating small amounts often.
  • Fatigue, joint aches, skin rash, or fever of less than 101°F (38°C).
  • Nausea, vomiting, or loss of appetite.

Yep. He's got 'em.

This morning I asked Ben what I can do to help him. "Take care of me," he replied. In all our years together, I've never heard him say this.

Please keep praying, please keep sharing our news, please help in whatever way you feel moved to do so. We love and appreciate you so much.

Carrie, Ben, Logan and Paige






11/18/2013
by Carrie Sayer
Dear Friends,

Ben starts the next round of treatments tomorrow (Monday, Nov. 18).

He had chemotherapy at the time of his surgery (October 1). Now, the doctor estimates Ben's bladder has healed enough from surgery to begin the BCG treatment. These will be weekly for the next six weeks.

We know of the side effects of the treatment. However, rather than focusing on these challenges, we are choosing to visualize and pray for whole body healing for Ben.

Your support means the world to us. Keep it flowing. Spread the word.

With love and gratitude,
Carrie, Ben, Logan and Paige




11/17/2013
by Carrie Sayer
Dear Friends,

Ben starts the next round of treatments tomorrow (Monday, Nov. 18).

He had chemotherapy at the time of his surgery (October 1). Now, the doctor estimates Ben's bladder has healed enough from surgery to begin the BCG treatment. These will be weekly for the next six weeks.

We know of the side effects of the treatment. However, rather than focusing on these challenges, we are choosing to visualize and pray for whole body healing for Ben.

Your support means the world to us. Keep it flowing. Spread the word.

With love and gratitude,
Carrie, Ben, Logan and Paige




11/17/2013
by Carrie Sayer
Dear Friends,

Ben starts the next round of treatments tomorrow (Monday, Nov. 18).

He had chemotherapy at the time of his surgery (October 1). Now, the doctor estimates Ben's bladder has healed enough from surgery to begin the BCG treatment. These will be weekly for the next six weeks.

We know of the side effects of the treatment. However, rather than focusing on these challenges, we are choosing to visualize and pray for whole body healing for Ben.

Your support means the world to us. Keep it flowing. Spread the word.

With love and gratitude,
Carrie, Ben, Logan and Paige




11/17/2013
by Carrie Sayer
Dear Friends,

Ben starts the next round of treatments tomorrow (Monday, Nov. 18).

He had chemotherapy at the time of his surgery (October 1). Now, the doctor estimates Ben's bladder has healed enough from surgery to begin the BCG treatment. These will be weekly for the next six weeks.

We know of the side effects of the treatment. However, rather than focusing on these challenges, we are choosing to visualize and pray for whole body healing for Ben.

Your support means the world to us. Keep it flowing. Spread the word.

With love and gratitude,
Carrie, Ben, Logan and Paige




11/10/2013
by Carrie Sayer
Dear Friends,

Ben starts the next round of treatments in one week.

We are enjoying a balance of staying occupied and investing downtime together as a family. Some unexpected blessings: Logan and Paige are getting to spend more 2 on 2 time with my parents. I am learning to let others help more. Loving friends have come from all walks of our lives to step in and help.

We are so very blessed.

Thank you for your continued support, in so many ways.

with love and gratitude,
Carrie, Ben, Logan and Paige




10/30/2013
by Carrie Sayer
Dear Friends,

Ben is keeping a very positive attitude.

He has scheduled his next round of treatments. This will include six weeks of Bacillus Calmette-Guerin (BCG) treatment. This is an immune stimulating bacterium. It is meant to help the walls of Ben's bladder fight off cancer.

  • People at high risk of recurrence or worsening will be advised to start intravesical BCG, usually within two to six weeks of the first treatment. This is most commonly followed by additional booster treatments (maintenance therapy) once a complete response is obtained. Occasionally, however, patients are advised to consider bladder removal (cystectomy) especially if the disease is extensive.
Ben has also switched to a diet of entirely raw, organic vegetables and fruits.

Thank you for your continued love and support. We feel lifted by everything you are doing to help us.

I'll leave you with a final thought. Some have asked, "How much do Logan and Paige know?" We've told them everything we know. Our family has been invited to present a talk about cancer survival next August. Logan remarked how cool that would be. Then he added, "If Daddy can pull through this cancer."

Please keep sending what you can. Prayers are at the top of the list; we believe in the power of prayer. Please send contributions for Ben's care if you are able. Send encouragement and love. And please share our link with others who may also wish to help.

Thank you, with love and deep gratitude,
Carrie, Ben, Logan and Paige Sayer
7570 2nd St.
Dexter, MI 48130








10/21/2013
by Carrie Sayer
Feeling lifted by all of the loving support from you. Thank you, thank you, thank you.

Please keep spreading the word and sharing our link.

P.S. Some folks have asked if they can send a check to us. Please see our mailing address below.

with love and gratitude,
Carrie, Ben, Logan and Paige Sayer
7570 2nd Street 
Dexter, MI 48130




10/18/2013
by Carrie Sayer
The numbers are coming in.

Our estimate for Ben's testing, surgery, and initial chemotherapy were accurate. Your help thus far has been critical in providing those initial services for Ben.

Now the reality of cancer treatment is here.

We have updated our new goal amount with the actual bill totals that have begun coming in, along with estimates for Ben's cancer treatment we are immediately facing.

Here's where your contribution is going:
  • Testing
  • Diagnosis
  • Surgery
  • Chemotherapy
  • Biological therapy
  • Intensive monitoring
Bladder cancer has an extremely high recurrence rate. We are doing everything possible to lower that rate, and restore Ben to top health.

Blessings to you for making Ben's care possible. The miracle is unfolding before our eyes. We are humbled and deeply moved by your love and support.

With love and gratitude,
Ben, Carrie, Logan and Paige




10/14/2013
by Carrie Sayer
Ben met with Dr. Goh today. Cancer treatment must begin immediately. It will cost additional thousands. We don't know the exact numbers yet. 

We found out today Ben has carcinoma in situ (CIS). It is a high risk, early bladder cancer. If not treated, the cancer is very likely to spread into the deeper layers of his bladder. 

Thank you for your continued love and support. You are helping us through with grace and strength.

With love and gratitude,
Carrie, Ben, Logan and Paige





10/13/2013
by Carrie Sayer
Dear Loving Friends,

Tomorrow (Monday, October 14), Ben sees his urologist to find out more information about the recommended cancer treatment and associated, estimated costs.

We'll be in touch with more news!

Thank you and God bless,
Carrie, Ben, Logan and Paige




10/13/2013
by Carrie Sayer
Dear Loving Friends,

Tomorrow (Monday, October 14), Ben sees his urologist to find out more information about the recommended cancer treatment and associated, estimated costs.

We'll be in touch with more news!

Thank you and God bless,
Carrie, Ben, Logan and Paige




10/13/2013
by Carrie Sayer
Dear Loving Friends,

Tomorrow (Monday, October 14), Ben sees his urologist to find out more information about the recommended cancer treatment and associated, estimated costs.

We'll be in touch with more news!

Thank you and God bless,
Carrie, Ben, Logan and Paige




10/11/2013
by Carrie Sayer
We are researching EVERYTHING.

We are staying positive.

The love and support we are receiving from you make ALL THE DIFFERENCE IN THE WORLD!

Thank you, with deep love and gratitude,
Carrie, Ben, Logan and Paige




10/09/2013
by Carrie Sayer
Ben has cancer.

We received the pathology report last night.

The tumor is malignant. It is high grade, with cells of abnormal size and shape rapidly multiplying.

Ben has a follow-up appointment with Dr. Goh next Tuesday. They will discuss treatment options at that time.

We will share details as we receive them.

Our family is stunned. We are in great need of your support.

Please contribute. Share this link. Pray for us.

We appreciate everything you do from the bottom of our hearts. 

Thank you and God Bless.
Carrie, Ben, Logan and Paige




10/05/2013
by Carrie Sayer
Update: After the surgery, Ben was in very intense pain. This has lessened in the past few days. He has discovered that the more his body rests, the less his bleeding is. I am hanging in there taking care of the clan, and keeping routine as normal as possible for Paige and Logan (sports, dance, science fun). My parents are helping every day. We have been blessed to receive delicious vegetarian meals this week from family and friends! Thank you to everyone for your moral support, prayers, offers of playing with Logan and Paige, hot food, contributions on this website, and spreading the word that we need help. God bless. love, Carrie, Ben, Logan and Paige







10/05/2013
by Carrie Sayer
October 1-5, 2013
  • Ben experienced significant pain and bleeding following his surgery. He cannot move around very much, and is restricted for 2-4 weeks of lifting anything more than 10 lbs.
  • Huge gratitude to those who are stepping forward to help us! We are in a financial crisis, but we know we are not alone. Thank you!
October 1, 2013
  • Ben had surgery to remove the tumor from his bladder.
  • Transurethral resection (TUR) of the bladder is a surgical procedure that is used both to diagnose bladder cancer and to remove cancerous tissue from the bladder. General anesthesia is used. During TUR surgery, a cystoscope is passed into the bladder through the urethra. A tool called a resectoscope is used to remove the cancer for biopsy and to burn away any remaining cancer cells. Bladder cancer can come back after this surgery, so repeat TURs are sometimes needed.


September 19-30, 2013
  • Many calls, research, and questions about the surgery and reflecting on the possiblity of Ben having cancer.
  • Trying not to react to our knowledge that Ben's dad died of cancer at age 52.
  • Asking Dr. Goh if the surgery could be postponed until we had health insurance beginning January 1, 2014. "Definitely not," was her answer.
  • Urgency of surgery understood. It could mean the difference between life and death.

September 19, 2013
  • Ben underwent a cystoscopy with urologist Dr. Goh.
  • Cystoscopy is a test that allows your doctor to look at the interior lining of the bladder and the urethra.
  • Cystoscopy revealed the presence of a tumor in Ben's bladder.
  • Dr. Goh described the tumor as papillary and low-grade. Surgery was immediately scheduled for October 1, 2013.

September 3, 2013
  • Ben underwent a CT/IVP.
  • Urologist found something in the left side of Ben's bladder
  • An ultrasound or a computed tomography (CT) scan may be combined with an IVP if more details about the urinary tract are needed. A computed tomography inravenous pyelogram (CT/IVP) is usually done to look for the cause of blood in the urine.

August 2013
  • Ben found blood in his urine.
  • Immediately called urologist.



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