Isabelle is a almost 6 month old baby fighting for her life in the PICU of a children's hospital in Albany New York. Izzy was born at a healthy 7lbs even and when admitted to the hospital for the 7th time recently was 7lbs 14.5oz. Up until the time of her admission she was stumping doctors as to why she would not gain weight even on high calorie tube feedings. here is the short version of what happened before this admission..... At one month Isabelle had her first surgery for pyloric stenosis, at two months she had surgery for severe GERD and had a g-tube placed, at 3 months she got a bacterial infection around the tube, at 4 months she was investigated by a geneticist, (who is still involved) and 9-20-12 she was admitted again for another attempt at figuring out why she would not gain weight. The geneticist suspects pyruvate dehydrogenase deficiency witch is a neuro-metoblic disorder so he places her on the diet that he thought she would do better on and she still was not gaining. They decided to place a central line and give her some nutrition that way and no a MRI to check her brain for any signs that we might be missing. The line was places in her inner jugular and tunneled out her back so she could not pull it as she is a very happy baby and active just very small. The MRI revealed a lesion like cyst on the pituitary gland in her brain that they think may be also contributing to her health problems. Just when we thought we were close to getting answers Isabelle started to get sick and on Friday the 5th of October she got really sick. Izzy some how acquired a blood infection while hospitalized and is now severely septic with respiratory failure and in the ICU. She is very swollen everywhere and we are pounding her with antibiotics and praying. This whole time her mom is by her side no matter where she is and her dad has to juggle between the hospital and home to take care of Izzy's 3 older brothers. Izzy has spent half of her little life as a inpatient and it has taken its toll on us as a family physically, mentally, emotionally and financially. The 3 boys at home miss their mommy and their sister.... There is Daymeon who is 7, Caydan who is 6, and Kenny Jr. who is 19 months. Her brothers have had to learn to go without things like cable or a computer to play on and a lot of other things they were used to having because we have had to cut things to try to make ends meet. We have 3 maxed out credit cards, a astronomical utility bill, we are behind on our van payment, and at times don't know if we will be able to pay rent. This page is set up so we may be able to focus on what matters the most, our kids and Izzy's health rather then trying to worry about power getting shut off or our van repossessed. This is going to be a long road but I have faith that it will all work out. We have a great support team! So i ask.... Would you be willing to skip your $5 cup of coffee even if just for one day and help us support this amazing strong willed baby? No donation is to small and a lot of small donations will add up fast! I thank you for reading my daughters page. The pictures of her with the vent are the most recent but I had to include some with her amazing smile. Izzy has lots of links and i will list them below... Her Facebook page~ www.facebook.com/HelpIsabelleGrow Her caring bridge(a lot of info here)~ http://www.caringbridge.org/visit/isabellesherman Twitter~ http://twitter.com/HelpIzzyGrow there are also a few you tube videos and the links can be found on her Facebook page. I thank you from the bottom of my heart for any help you may bring to our family!!! God bless you all and GO TEAM IZZY!!!!! P.S. don't forget to like and share this page and Izzy's other pages to share her amazing strength with the world!!!
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