I haven't posted in a while. We got our blood test results last month and her numbers had dropped on peanut. The Dr. thought perhaps she might be outgrowing her allergy and asked we do a food challenge to prove her allergy. Today we completed the challenge - well actually failed it. She received her first dose of peanut, and about 3 minutes later she said "Mommy, my lip feels funny" Sure enough, her lip was swelling up! This was about 3/100ths of a peanut that caused this reaction. We stopped the challenge then and there because that was enough to prove she was still allergic. Imagine what her reaction could have been at an entire peanut! We got sooo lucky that it was just a swollen lip with the tiniest dose.
We had to raise the goal amount today. We have been informed that the billing estimates given were incorrect, and we have to pay for an office visit each day we go in for treatment on top of the payment for the updose. This makes things quite a bit more expensive, but we will get there, one way or another!
Another lowering of goal today as we received another donation in the mail. Thank you to Grandma! We love you!
We are lowering our goal amount again thanks to more donations that came outside of the site! Many loving thanks to the Sevak family and the Peterson family!!!!
We are still on track for May 2nd. She goes to an appointment in April to check her lung function, her asthma has to be well controlled before we can start OIT. We are also going to do another blood test before she starts to check her IgE level to peanut. Along with that we will run tree nut levels to see if she is allergic to any tree nuts. We generally avoid them too because most tree nuts are processed along with peanuts in factories, but have been eating peanut free almonds and pistachios at home. We just want to make sure before we try any others like pecan, walnut, etc. Crossing our fingers!
Whoohoo! I'm so amazed. grateful, and just plain humbled. We have raised over $1250 dollars in less than a week! THANK YOU!
Thanks to a generous donation that Johnna Nitcholas-Ivey sent to us, we have dropped our goal amount! We can't manually add donations to the site, so we will be dropping the total goal when we get donations that don't come through the site. Thanks Johnna!
We have our appointment set! May 2nd we will arrive at the office at 8am. We will stay all day until around 3 or so. Saoirse will get increasing doses every 15 minutes of peanut solution and the goal is to end at 2.5mg of peanut protein. This is about 1/400th of a peanut. If she starts having symptoms at a lower dose they will stop the process and send us home on the last dose she is okay with.
Thanks everyone for continued support! Please share and pass along.
Thanks so much! We are so grateful that we have reached 3% of our goal in less than 24 hours. We are feeling the love for sure. <3