We just wanted to thank you all for your support. While this fundraiser didn't meet its goal, the help we have received has far exceeded anything we imagined. We have been overwhelmed by the amount of generosity we have been shown- you all are truly keeping us afloat.
Dave's recovery is still going well. He will most likely be receiving a "stem cell boost" in early January- cells from his initial donor that will hopefully boost his T-cells and improve his overall blood counts, which still remain low.
In the meantime, and until next September when we reach the one-year mark, we will be continuing weekly check-ups in Boston, writing music at home, and looking forward to getting back out there. Dave is under doctor's orders to stay out of crowded places until then, so it'll be a quiet year for us- but hopefully one that is also peaceful, creative, and rejuvenating. We wish the same for all of you.
Happy New Year!
-MorganEve and Dave
Last night, October 1st, Dave was finally sent home from the hospital! He'd been there for 36 days!
Dave is stil feeling fatigued, but gets stronger every day and is very happy to be home.
The next three months will be crucial to his recovery. Though his white blood cell counts are coming up now (and are high enough to be sent home) he essentially has a baby immune system. The next three months will be a learning experience, since Dave won't be able to eat certain foods (imported cheeses, alcohol, anything raw...) and may discover that his new immune system reacts differently to certain things than his "old" one did. (People often find that after transplant they are no longer allergic to things they used to be!)
We'll be having weekly visits to the doctor for check-ups, blood-work and to stay ahead of any complications, but other than that we'll be staying low-key at home until he's cleared to resume more normal activities. Of course, being stuck at home means lots of time to sit out on our porch, catch up on reading and of course, play music, so there are up-sides to the situation.
Please keep Dave in your thoughts, help when you can (at-home meds will be $200 a month and we're still paying bills from before the transplant...), and stay in touch. Hearing from you all always brightens our day. You guys are the best.
Lots of love,
MorganEve and Dave