Beating Myeloma with inspiring, creative, & positive action! (Glyn Morgan)

Beating Myeloma with inspiring, creative, & positive action!

For: Glyn Morgan
Organizer: Timothy Ashton & Edward Brady
Beating Myeloma with inspiring, creative, & positive action! (Glyn Morgan)
$1,712
of $10,000 goal
17% Complete
This fundraiser is closed. Thank you for your support!

In November 2013, Glyn was diagnosed with Multiple Myeloma - a blood related cancer that starts in the Bone marrow. This came a quite a shock since Glyn had always lived a healthy and active lifestyle - from playing soccer in high school to hockey in his 20s - to mountain biking and road cycling in later years.

At diagnosis, more than 70% of Glyn's bone marrow was compromised with Myeloma cells resulting in significantly reduced red and white blood cell count. Glyn began an intense schedule of chemotherapy at the Dana Farber cancer institute in Boston in December 2013; then in March 2014, underwent a stem cell transplant at the Brigham and Women's Hospital.The transplant was followed by a three month recovery period and two further cycles of chemotherapy.

Glyn has responded extremely well to the treatment protocol; recent blood labs showed a zero M-spike - which is measure of the undesired proteins that the Myeloma cells create. Myeloma is still considered an incurable cancer, so even though the response to treatment has been great, it's necessary for Glyn to take daily maintenance medication - a mild form of chemo - to prevent the progression of the disease.

There;s no doubt that the treatment Glyn has received, together with his positive attitude have been key in his fight against Multiple Myeloma. Unfortunately, the medical expense for the treatment were considerable - the medical bill for transplant alone exceeded $200,000! While healthcare covers the majority of the cost - there are many components of the treatment that carry a hefty co-insurance. Long story short, Glyn now faces thousands of dollars in out of pocket expenses. As Glyn moves forward, his focus is not only to keep beating Myeloma, but to beat the mountain of debt too.

During the next few months, Glyn is planning more fund raising events and looks forward to sharing the success of his treatment as well receiving your support! 

 

Thank you for the gift of your time to read this story, and for any donation that you are able to make.

Updates

08/10/2014
by Timothy Ashton & Edward Brady
Wow, I can't believe it's August already. It's been a crazy busy year - especially with the additional layer of cancer treatment. The good news is that I'm all done with chemotherapy treatment and began maintenance treatment on July 30th. While there have been great strides made in the treatment of Multiple Myeloma, it is still considered incurable. Myeloma cells become sequestered in the body - even after having stem cell or bone marrow transplant. The maintenance treatment is designed to prevent the progression of the sequestered cells and basically consists of taking a daily pill which is actually one of the chemo agents that is used to treat the disease, but it's not considered chemotherapy because of the lower dosage. My red and white blood counts continue to increase following the stem cell transplant and I'm feeling great! What is particularly exciting is that the Physician Assistant at Dana Farber called me on Friday to let me know that the blood lab work shows I have zero "M-spike" which means that I currently have a very small amount of Myeloma cells present! I am waiting for the Biopsy result to give a precise measure, but in any case, this is fabulous news! While the health side of things is great, the medical expense side of the equation isn't looking so good. In january Blue Cross Blue Shield made changes to my healthcare benefits plan which resulted in a 20% co0insurance for me to continue to receive treatment at Dana Farber - I know, how ridiculous right? Anyway, the result is that my medical bills amount to many thousands of dollars and to help bridge this, I plan to reinvigorate fund raising through this fundraiser page.

03/19/2014
by Timothy Ashton & Edward Brady

Sorry there's been a bit of a radio black-out - but quite a bit to update you all on today:

On February 24th, Glyn went through a series of screenings in readiness to begin the transplant process. Best news was that the Myeloma concentration had dropped from 70% at diagnosis in November 2013 to less than 10% which represents a fantastic response to the chemotherapy.

On March 6th, the mobilization for transplant began starting with a high dose chemotherapy followed by ten days of stem cell generation medication. Glyn tolerated the high dose chemo very well - as with the prior chemotherapy cycles.

March 17th, Glyn was at the Kraft Family Blood Center at Dana-Farber for stem cell harvesting. The results of the mobilization the previous week was simply amazing. The Center looks for a stem cell to peripheral blood ratio of 50:10,000 for a successful harvest. Glyn's count was a staggering 662:10,000 - the third highest on record at the center! This enabled the center to harvest more than 20 million stem cells in just four hours - five times the amount needed for a transplant.

Glyn will be admitted to Brigham and Women's hospital on Sunday March 23rd. on Monday and Tuesday, he will receive high dose chemotherapy that will essentially destroy all of his bone marrow. On Wednesday, 10 million of the harvested stem cells will be re-infused which in turn will develop into new, healthy bone marrow.

The transplant team expects Glyn to make sufficient recovery to be released from hospital on April 9th to continue a 6-8 week recovery at home.

Your generous support has been fundamental to keeping the treatment program at the planned pace - the results speak for themselves!

Please keep spreading the word, we need to keep funds coming in to assist during the recovery period as medical and convalescing expenses will still need to be met.

Thank you all again for your support!!



03/19/2014
by Timothy Ashton & Edward Brady

Sorry there's been a bit of a radio black-out - but quite a bit to update you all on today:

On February 24th, Glyn went through a series of screenings in readiness to begin the transplant process. Best news was that the Myeloma concentration had dropped from 70% at diagnosis in November 2013 to less than 10% which represents a fantastic response to the chemotherapy.

On March 6th, the mobilization for transplant began starting with a high dose chemotherapy followed by ten days of stem cell generation medication. Glyn tolerated the high dose chemo very well - as with the prior chemotherapy cycles.

March 17th, Glyn was at the Kraft Family Blood Center at Dana-Farber for stem cell harvesting. The results of the mobilization the previous week was simply amazing. The Center looks for a stem cell to peripheral blood ratio of 50:10,000 for a successful harvest. Glyn's count was a staggering 662:10,000 - the third highest on record at the center! This enabled the center to harvest more than 20 million stem cells in just four hours - five times the amount needed for a transplant.

Glyn will be admitted to Brigham and Women's hospital on Sunday March 23rd. on Monday and Tuesday, he will receive high dose chemotherapy that will essentially destroy all of his bone marrow. On Wednesday, 10 million of the harvested stem cells will be re-infused which in turn will develop into new, healthy bone marrow.

The transplant team expects Glyn to make sufficient recovery to be released from hospital on April 9th to continue a 6-8 week recovery at home.

Your generous support has been fundamental to keeping the treatment program at the planned pace - the results speak for themselves!

Please keep spreading the word, we need to keep funds coming in to assist during the recovery period as medical and convalescing expenses will still need to be met.

Thank you all again for your support!!



03/07/2014
by Timothy Ashton & Edward Brady
On Sunday March 2nd, we held a Fundraiser event for Glyn at Vanity Supper Club in Providence (www.vanityri.com). The venue was generously sponsored by Edward Brady with food from Vanity, Thirsty Beaver,Venda BarCapriccio's, Chello's, and Cami Cup Cakes. Music was provided the awesome band "The Rock". We were overwhelmed with more than 35 donations for the Raffle and a dozen high-ticket items for the silent auction. The venue was packet with over 130 supporters; family, friends, and friends of friends who mingled and socialized while enjoying great food, cocktails, music, and great prizes. Photos available here:

https://www.facebook.com/VanityRI/media_set?set=a.496560993800067.1073741841.100003385127609&type=1

The event raised just over $6200 dollars which is an amazing triumph! even after factoring out of pocket expenses net proceeds were over $5500. This has significantly closed the gap on reaching our target of $10,000 The collective total so far is $7000 - let's pull as many remaining strings as possible to reach our goal by the end of May when Glyn should be well into his recovery phase.

Please share this update with as many people as you can, progress has been tremendous so far and we know that we can make reaching our goal a reality with your help. All donations are welcome - no matter how small - every little counts!

Many Thanks to everyone that has supported us so far!

01/24/2014
by Timothy Ashton & Edward Brady
Glyn began the final round of Chemo yesterday before preparing for Transplant in March. 

Great news; response to chemotherapy has been fantastic:

November 22nd 2013 
- White blood cell count = 3.2 (Normal 9.2)
- Red blood count cell = 3.1 (Normal 5.6)
- Kappa Protein = 3760 (Normal 700-1600)
- IGG Kappa spike = 3.1 (Normal less than 1)

January 23rd 2014 
- White blood cell count = 3.8 (going up = good)
- Red blood count cell = 3.34 (going up = good)
- Kappa Protein = 1410 (going down = good)
- IGG Kappa spike = 2.01 (going down = good)

These numbers indicate that Mylemo tumors in the bone marrow have been reduced by 30-50%

Please share this news, let's get the momentum going on fundraising to keep this progress on schedule!

Thank you!!


01/16/2014
by Timothy Ashton & Edward Brady
Glyn is making good progress with the treatment program. He's just completed another cycle of Chemotherapy and initial results confirm that the concentration of Myeloma and associate "M-spike" have gone down - obviously this is great news! The next cycle of chemo begins next week - we'll post updates on results. In the interim, please encourage support for him - and thank you again for helping us to keep the momentum going!! 

01/09/2014
by Timothy Ashton & Edward Brady
Hi

Thanks for getting the fund raiser off to a great start, your donations will be instrumental in meeting Glyn's treatment and recovery program. The road ahead may look long, but little by little, with the help of familty and friends, we are confident that we will meet our goal.

Please check back soon for more updates. In the meatime, please take a moment to visit our Facebook page at: https://www.facebook.com/BeatMyelomaTogether.

Many Thanks

Supporters

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