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Amy Strong Legacy Fund

$26,701raised of $40,000 goal
66%

Organizer: Sarah Nash & Erin Nash Fairfax Beneficiary: Amy Nash Touchet

Amy passed away on February 27, 2014 from a rare NET cancer. She left behind a loving husband and two young children. This Fund is to support her dream and help provide for her family.

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Fundraiser Details

Amy fought a courageous 8 month battle against NETs. She planned as much as she could but in her own words, "bad luck," rather than ill preparation left her without life insurance. Her one wish was that her kids would be able to " enjoy all the blessings and opportunities that my own parents provided as I grew up." 

Amy's symptoms began in July 2013 which included extreme back pain and nausea. After 3 trips to GSH and Stanford's ER, being misdiagnosed and treated for shingles, as well as being falsely reassured that cancer could absolutely not be a cause, she finally had a CT and was told she had a stomach tumor. This tumor was later found to be Stage 4 Neuroendocrine Gastric Carcinoma. Needless to say, our family and the medical team were in shock. Amy was young, ran daily, ate healthy, and all her blood work was consistently normal- not the picture of cancer that anyone anticipated. 

Amy was the breadwinner for her family, she provided the only income. Her loss leaves the Touchet family in financial and emotional distress. Her husband Paul and two young kids (Noah 4 years old, Ashlyn 2 years old) are just taking it one day at a time.

Our motto throughout her journey was RU AMY STRONG. Amy wore #8 in college, which turned sideways is an infinity sign- hence our additional motto of Infinite Strength, Infinite Love. 

In order to help the Touchet family PayPal account has been set up for donations. Funds will be used for bills, medical insurance & 529 college savings accounts for the kids.

See Amy's journal entries for more info at www.caringbridge.org/visit/AmyTouchet 

We are also on Facebook: Teamamystrong

* Please email TeamAmyStrong@gmail.com with any questions, concerns, or simply to express your support for her family. 

Thank you for your support! 

To infinity and beyond! TeamAmyStrong. 

Sincerely,
Sarah Nash & Erin Nash Fairfax (mom & big sis)

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Updates

Updates

04/26/2014
by Sarah Nash & Erin Nash Fairfax
Our first holiday after Amy's passing was Easter 2014. It's only been about 7 weeks but it seems like it has been a long long dream.  Walking up to my parents house I was met by Ashlyn and the first thing I wanted to ask her was, "Where's your mommy?" Its still hard, hard for everyone.  Death is never easy.  As Amy's older sister I feel a sense of responsibility to ensure her legacy is kept alive and that her children are cared for.  I know Paul hurts and is trying his hardest to do what mommy asked.  Everyone copes and grieves differently.  I feel the most for Ashlyn, I don't know if that's fair or not, but I know that girl needs a mommy. She needs someone soft and caring, someone to play princess, someone to take her shopping and to do her nails. A MOM to do her hair, put her in a dress and slide her twinkle toes into princess shoes. I feel the sense of loss in her....she just wants her MOM.  For now, grandmas, siblings, friends and Paul are doing our best. Amy was the best. Noah is playing soccer and is doing awesome.  His team name is Amy's Awesome Ninjas. Fittingly, Noah is number 8! He scored two goals today. Kids are enjoying school and tooling around with dad...boating, beach and zoo to name a few. Today they visited Amy's grave site, trimmed flowers and placed some new ones. In a few weeks we will celebrate Amy's 34th birthday.  Both sets of grandparents will visit and Paul has plans to play the drums in her honor.  Love you momma! 

We know Amy's spirit is alive and well. She is still speaking to us in so many ways. So many continue to share how she has touched them. In my own life I am constantly challenged to take a step back and count my blessings. Life is so fragile. So live the life you have imagined, and never give up! Zebras, the number 8 and infinity sign will forever hold a special place in our heart. #TeamAmyStrong! 

From Amy's Dad, Ron: 

For Facebook....Amy your family missed you this first major holiday since your passing 27 Feb 2014---Easter was not the same without you !! But, we did all the things at your parents house (Ron & Sarah Nash) you would have wanted with your hubby Paul, children Noah and Ashlyn,ie, Easter egg hunt in the front yard at your parents house with the cousins, swimming in the pool and hot tub,hiking to the pond and feeding fish and ducks,visiting the Touchet family,consuming the Easter buffet prepared by your mom and sisters and Aunt Rebecca,visiting the San Digo Zoo, taking family pictures and sharing on the internet. We felt your presence with us this weekend and know you missed us also. Paul immensely misses you but is tryng to remain "Amy strong" and raise our grandchildren the way you would have wanted.Love you forever !! Ron and Sarah Nash

For Caringbridge.....To Rose and Sam and all of AmyNashTouchet friends-we (Amy's parents Ron and Sarah Nash) want all of her friends who do not know that they can see all of Amy's videos from her funeral and other venues by typing amynashtouchet into- google-  and also -youtube---besides the Amy slide show and  secondly a video titled "Under the blanket" shown at her funeral--you can watch a slide show of the 5K fun raiser held in San Diego 2 days after her passing (27 Feb 2014)-there are also videos of her Radford college soccer coach remembering amy from her soccer playing days(1998-20020)-a video of a pediatric patient,Alex,visiting Amy 36 hours before her passing(amy loved working as a occupational therapist specializing in young children)-her friends can also check her on facebook at amynashtouchet--we also set up a memorial website on FB at teamamystrong-----Paul and the 2 children Noah(5) and Ashlyn (3) miss their mom immensely-they spent Easter weekend here in San Diego visiting us (her parents) and Paul's parents and siblings-they continue to reside in Los Gatos, CA.  and plan to raise the children there with the help of what I called the "village" in my talk at Amys funeral-Amy will always be with her family in spirit and with the help of you, the village, ie ,her friends, co-workers, LDS community, neighbors, etc, we hope that Paul and the grandkids will grow up and make their mother Amy proud-Amy no longer suffers from the pain of cancer and watches over all of us-forever family-infinite love--Ron and Sarah Nash(amy's parents)  23 April 2014

ron nash


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03/31/2014
by Sarah Nash & Erin Nash Fairfax
Links galore!!!!! Amy sure left a Legacy, to infinity and beyond, Amy Strong!

Amy’s Journal: www.caringbridge.org/visit/AmyTouchet

How to lend a helping hand: http://www.lotsahelpinghands.com/c/707509

Family Donation site: https://www.youcaring.com/medical-fundraiser/amy-strong-net-cancer-treatment-fund/100832

Facebook: Teamamystrong

Questions: teamamystrong@gmail.com

Support Amy's Choice Nonprofit: Support the work of Dr. Emily Bergsland at UCSF. Please make checks out to UCSF and on the memo line or an accompanying piece of paper, write “Neuroendocrine Tumor Research Fund (B2673) in memory of Amy Touchet.” Contributions can be sent to UCSF c/o Sarah Krumholz, P.O. Box 45339, San Francisco, CA 94145-0339.

Obituaries: Washington Post, San Diego Union Tribune, San Jose Mercury News: http://www.legacy.com/obituaries/mercurynews/obituary.aspx?n=amy-louise-nash-touchet&pid=169904207&fhid=2112

Nonprofit & family friends site - Annettes Angels Tribute: https://www.facebook.com/annettesangels061450/posts/609483122475374:0

 “Say Something” Amy’s version at her Service:http://youtu.be/90N1dXQl0wo

 “Say Something” Kaylie & Paul cover: http://m.youtube.com/watch?v=guE68P3qbko&sns=em 

Amy and patient Alex videos from her last day:

 http://youtu.be/_lhvJrH-fv0

 http://youtu.be/qfXeQqw27DM

In Memory of Amy Touchet Slideshow by Spencer: https://www.youtube.com/watch?v=Zx5hXTKecR8&feature=youtu.be&fmt=22

Under the Blanket, Spencer's Video: https://vimeo.com/87788205

Kim Treffinger 5k Run Video: https://vimeo.com/88023737

 Nike Women's Marathon KPIX Channel 5

http://www.youtube.com/watch?v=fPns9E94jPY

 POST RACE Nike Women's Marathon KPIX Channel 5 http://www.youtube.com/watch?v=-fYaT6YKcss

Radford University Women's Soccer Helps Alum's Fight Against Cancer

http://www.youtube.com/watch?v=4BAJmD8yDOg


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03/06/2014
by Sarah Nash & Erin Nash Fairfax

Amy Louise Nash Touchet, 33 years young of Los Gatos, CA passed away on February 27, 2014. She fought a courageous 8-month battle against a rare neuroendocrine gastric carcinoma (NET). Born in Millington, Tennessee May 17, 1980. Amy was married January 2, 2004 in San Diego, CA. She is survived by her loving husband Paul Louis Touchet and two young children Noah and Ashlyn, her parents, Dr. Ronald and Sarah Nash, siblings Erin, Allison and Andrew, grandmother Barbara Luse,in-laws Earl and Sharreen Touchet and a large extended family.She attended Radford University on a soccer scholarship where she was a standout player.  She obtained her Masters degree in Occupational Therapy from San Jose State University. Amy was passionate about her work at Santa Clara County, CA Children’s Services where she treated young children in Gilroy and San Jose for the last 9 years. Amy was an avid runner. She was proud to run the Women’s Nike Marathon annually with Team “A” in honor of two young leukemia patients. Amy touched many people throughout her life in her service to others. She demonstrated an amazing amount of grace and courage throughout her journey. She has been an inspiration to her village and will be remembered until eternity – kind. She had a strong faith that she practiced daily, as a member of the Church of Latter Day Saints Los Gatos Ward. Celebration of Life was held Monday March 3, 2014.

 

Amy’s Journal: www.caringbridge.org/visit/AmyTouchet

How to lend a helping hand: http://www.lotsahelpinghands.com/c/707509

Facebook: RUAmyStrong or Teamamystrong

Questions: teamamystrong@gmail.com

Nonprofit: Support the work of Dr. Emily Bergsland at UCSF. Please make checks out to UCSF and on the memo line or an accompanying piece of paper, write “Neuroendocrine Tumor Research Fund (B2673) in memory of Amy Touchet.” Contributions can be sent to UCSF c/o Sarah Krumholz, P.O. Box 45339, San Francisco, CA 94145-0339.

Family Donation site: https://www.youcaring.com/medical-fundraiser/amy-strong-net-cancer-treatment-fund/100832


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02/27/2014
by Sarah Nash & Erin Nash Fairfax

Celebration of Life Announcement

Amy Louise (Nash) Touchet

 

It is with a heavy heart that my family announces the passing of my Amazing sister, Amy Louise Nash Touchet. She fought a courageous battle against NETs and was an inspiration to many.  Amy has been a resident of Los Gatos, CA since attending San Jose State University. Prior to Los Gatos she lived in San Diego, CA, Chantilly, Virginia & Okinawa, Japan.  She was a proud member of the Radford University Women’s Soccer team and a dedicated occupational therapist with Santa Clara CA Children’s Services. She leaves behind her two children, Noah and Ashlyn Touchet, her masterpieces; loving spouse, Paul Touchet, her rock.

 

The Nash and Touchet Families would like to invite you to a celebration of life:

 

Date: Monday March 3, 2014

Viewing: 10:00 a.m.

Service Time: 11:00 a.m.

Location: Church of Jesus Christ of Latter-day Saints

15985 Rose Ave

Los Gatos, CA 95030

(408) 395-6433

 

*** After the services a luncheon/ “Concert” will be held in Amy’s honor ***

Location & time TBA

 

For those unable to attend on Monday a viewing will also be held:

Date: Sunday March 2, 2014

Time: 4:00-6:00 pm

Location: Darling and Fisher Funeral Home

615 North Santa Cruz Ave

Los Gatos, CA 95030

 

***As we finalize plans the above information is subject to change***

 

Sincerely,

 

Erin Nash-Fairfax

 

Infinite strength, infinite love.

RU Amy Strong

 

Donation site: https://www.youcaring.com/medical-fundraiser/amy-strong-net-cancer-treatment-fund/100832

 

Journal: www.caringbridge.org/visit/AmyTouchet

 

How to lend a helping hand: http://www.lotsahelpinghands.com/c/707509

 

5k Registration:

 

http://www.active.com/event_detail.cfm?event_id=2124555 #sthash.2RNXBlpB.dpuf

 

Questions: teamamystrong@gmail.com


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02/24/2014
by Sarah Nash & Erin Nash Fairfax
Eternity

Amy can't see or type so sissy Erin is writing. 

Being transitioned to hospice with poor outlook. Thanks for joining my fight. Something cancer will never take away from me. With all my strength and love. Amy Nash Touchet

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02/13/2014
by Sarah Nash & Erin Nash Fairfax
Just posting a reminder about the upcoming 5k to support Team Amy Strong.

So Cal Family and Friends and those willing to travel.......

Amy is on the up swing and we think she will be able to attend the event & then maybe head to Disneyland with the kiddos! What a great weekend this will be.  Hoping to see many family and friends there. Make sure to register so you can get your tshirt and swag bag.  As of today we have 66 registered.  It is in 2 weeks and our goal is 200.  Help us meet our goal and come see Amy. 

This event it to benefit Paul Touchet Amy Nash Touchet and their beautiful litle family! (they have 2 little kiddos that are the cutest!)
Our goal is to raise $20K for them. Amy has a rare stage 4 cancer and the money is going to help with treatments, bills and to help with anything they need. She is an avid runner and I couldn't imagine doing an event other than a 5k! 
I am humbled by their love, faith, sacrifice and strength as a couple and a family. They have been a source of inspiration to me and countless others. Please pass this on! If you cannot attend, but would like to donate money or supplies please let me know!
For google maps purpose use the following address since the park doesn't seem to have one at this entrance. 1820 Rios Ave, Chula Vista, CA it is the address of a church at the end of the street, the park entrance is right before the church. Park in the parking lot or on the street. 

RACE STARTS AT 9AM!! 
Price of race is $20. You will get a race shirt and swag bag 

CHECK IN STARTS AT 8, at the end of RIOS, where it dead-ends.

Silent auction and food after the race.

TO REGISTER- http://www.active.com/event_detail.cfm?event_id=2124555 

RU AMY STRONG?!

Thanks! 

Erin (Amy big sis) teamamystrong@gmail.com

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02/01/2014
by Sarah Nash & Erin Nash Fairfax

Life Cup Soccer Tournament

 

My mom said she didn’t know how to tell this part of the story. I felt destined to write as the idea for this post awoke me from my sleep, mind racing.

 

So here is an update family, friends, and supporters.

 

RU Team Amy Strong vs. Neuroendocrine Carcinoma

 

On Tuesday we found out who our opponents are:

 

ERBB2, ATM, CCNE1, MYC, TP53

 

The toughest opponents on the field.  Undefeated.

 

But our spirits are not broken.  We’ve put up a good fight to get here, to the championship game, and we are not giving up now. 

 

Top coaches: UCSF, Stanford, Dr. Bergsland, Dr. Cabeebe

Team Captain: Sarah Nash

MVP: Amy

 

This week we traveled to MD Anderson to find new players for our team. On the way out, we almost lost our team captain due to the stomach bug and missed our first game due to weather, but alas we made it! The coach at MD Anderson was very good, Dr. Yao. All the recruits played a good game but in the end there just wasn’t a good match. We were knocked down but came away with our head held high.  We will find one!

 

Mets to the liver. No clinical trials available in Texas.

 

The last game of the tournament in Texas was tough.  Muscles so sore. Mentally drained. We didn’t win, no new recruits, but we didn’t give up. Bags packed, signs in hand we headed to the airport.

 

No seats available on any flights…we recruited our fans to help find a flight home.  It took a village, but we did it! Thank you Southwest and all who helped. We couldn’t have waited another day.

 

Pain, pain so bad it took double the dose. Nausea like no other.

 

Emergency crews met us on the tarmac. We spent the night with our teammates at UCSF and feeling recharged; we headed home to San Jose.

 

We met with our coach, Dr. Bergsland. She gave us two choices for new recruits:

 

Hospice or CAV (Cytoxin Adriamycin vincristine)

 

 We chose CAV because WE ARE AMY STRONG!

 

So here we are, playing another game with CAV.  We’ve been recharged with platelets, pain meds and family. 

 

Admitted to Good Samaritan hospital. Kids under 16 not allowed up due to flu season. Boo!

 

Whether or not we win our last match of the tournament we know we gave it our all.  We recruited the best players.  We’ve left no stone unturned. We’ve given it our best and we have amazing fans. Through it all our coaches say we have been a good sport.

 

Sportsmanship: Conduct and attitude considered as befitting participants in sports, especially fair play, courtesy, striving spirit, and grace in losing.

 

On Super bowl Sunday, whether your team wins or loses, be a good sport. Shake your opponent’s hand and say, “Good Game.”  Walk away with your head held high; cause sometimes, even when you try your hardest, winning isn’t everything. It’s that dash in the middle, the game you played.  You’ve put up a good fight.

 

Good game, Amy.  The toughest player out there!

 

The Strongest I know. We love you.

 

Play on!

 

Infinite strength, infinite love. 


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01/20/2014
by Sarah Nash & Erin Nash Fairfax
5k Fun Run/Walk

March 1, 2014

Otay Valley Regional Park RIOS AVE ENTRANCE

This event is to benefit Paul Touchet & Amy Nash Touchet and their beautiful little family! (they have 2 little kiddos that are the cutest!)
Our goal is to raise $20K for them. Amy has a rare stage 4 cancer and the money is going to help with treatments, bills and to help with anything they need. She is an avid runner and I couldn't imagine doing an event other than a 5k! 
I am humbled by their love, faith, sacrifice and strength as a couple and a family. They have been a source of inspiration to me and countless others. Please pass this on! If you cannot attend, but would like to donate money or supplies please let me know!
For google maps purpose use the following address since the park doesn't seem to have one at this entrance. 1820 Rios Ave, Chula Vista, CA it is the address of a church at the end of the street, the park entrance is right before the church. Park in the parking lot or on the street. 

RACE STARTS AT 9AM!! 
Price of race is $20. You will get a race shirt and swag bag 

CHECK IN STARTS AT 8, at the end of RIOS, where it dead-ends.

Silent auction and food after the race.

REGISTRATION IS NOW OPEN!!!!!! You can do the following: register only, register AND donate OR just donate! Please make sure you print out your confirmation and bring it with you to check in to the event. RU AMY STRONG!?! 
http://www.active.com/event_detail.cfm?event_id=2124555

Sincerely,

Rabeka Spagnolo Harrison

Here are some other thoughts from Rebeka:

Here is the list of things we are asking to be DONATED or money doanted to cover the costs. We want as much of the $20k to go to the Touchet family and not to costs to host this event.  Thank you ahead of time for your generosity and help without you we couldn't do this alone!
-1-2 Banners (they could be made out of paper or painted on fabric or a big printed one)
-6 Signs to mark exits from freeway and to registration
-T-shirts (either at cost or donated to event, we anticipate needing about 200 shirts)
-Some one who is EMT or firefighter or liscensed first aid to help day of event (at least 1 person, but 3 would be better)
-Trail markers (bright colored ties that we could tie on bushes to mark the trail as to not hurt the plants)
-5-10 Volunteers day of to help check in, answer questions, help with pre race, help with post race, Silent auction and prep work
-5-10 Volunteers day before- to help stuff race bags, make sure course is marked and to prep food (if needed)
-1-3 Photographer(s)- to document event for family and publicity
-Silent Auction Donations- AS MANY AS WE CAN GET! 
-Sponsorships- $75 to sponsor and put goodies/biz cards in swag bag $150 for name to go on banner and swagbag 
-Post Race food- Bananas, oranges, muffins, bagles, water, gateraid, ice, coffee, cocoa, cups, napkins (and if we could get a vendor to do tacos/mexican food? )
-Money donations. OUR GOAL IS $20k. If you know of any business who would like to sponsor, please send my way! 

Interested here is her email: RabekaHarrison@gmail.com phone: 619.829.6088

or 

Private Message Rabeka Spagnolo Harrison on Facebook

RU Amy Strong? 

Thank you! Erin Nash Fairfax (Amy sis) 


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12/27/2013
by Sarah Nash & Erin Nash Fairfax
The bad P's- Past due, pain, puking, no PRRT, and plans changing. But thankfully there's the good P's which we will celebrate and embrace- preschool, pizza, perfection, prayer, pictures, poster and peace.

It's been a too long since Mommy has had enough physical and emotional energy and strength to write a journal entry. Hence- Past due. I post very brief posts on Facebook to give everyone updates, but I miss pouring out my heart into my journal entry. It's great for the mind, body, and soul and you all patiently read and tolerate my sometimes scrambled pill, pain, and emotional words so patiently. Thank you for your encouraging comments, I read every single one and they are appreciated  :)

So the last couple weeks have been rough and filled with pain and puking. Severe hip, back, and stomach pain returned about two weeks ago. After two very long trips to ER's accompanied by wonderful, supportive best friends, it was confirmed that the cancer had become resistant to the second line of chemo. BUMMER. We also received the very heartbreaking and disappointing results from the experts in Israel and Germany that I am not a candidate for PRRT. It felt like I got body slammed with bad news. It was depressing, discouraging, and scary that one of the few treatment approaches to cancer that had very encouraging results wasn't an option. So our only choice for now is to visit more cancer centers throughout the US, including Stanford, MD Anderson, and UC Davis for consultations and discussions on clinical trials. Reality is- options are running out and there are very limited clinical trials for my very rare cancer. 

SO Plans change and we continue to ride the wave. I'm now on the my third line of treatment (7th round of chemo overrall) and will explore more cancer centers throughout the US in hopes that we will have a clinical trial that's a right fit for me. Patience, patience, patience... and determination. Amy Strong. Endure, endure, endure...

And now for the fun stuff! Noah and Ashlyn's Preschools have so generously given us constant support throughout this cancer journey. Noah's preschool surprised us with a beautiful Christmas wreath filled with generous gift cards from parents and classmates from LGPNS. Gas, grocery, clothing, visa, and department stores gift cards by so many. Our entire family was extremely touched and humbled by the kindness of our preschool family that welcomed us with open arms into the amazing LGPNS preschool in August. We were donated enough funds in Visa gift cards from LGPSN in addition to xmas gift checks to go towards our number 1 fun-filled wish- to start a fund for Disney season passes. We're almost half way there! Eek! 

Ashlyn's preschool, Shannon Nursery School, has also been very active in supporting our journey. One of the most touching services by one of her young classmates was the donation of the funds of the kids' lemonade stand towards our family. I hope one day my kids will be able to serve others and follow this incredible example the kids and parents have set for our family and community. Thank you. There was also a basket of cards and well wishes from the school which was so welcoming and heart warming to see as I walked in the door. After receiving bad news all week, just seeing the efforts of these young families brought strength and comfort to know our family is not alone. I cried tears of joy as I walked back to the car, in shock at the incredible amount of good people that have become a part of our journey. Our roof is also generously being replaced by the efforts of an anonymous donor and the preschools. Blessings, blessings, and prayers answered. Thank you just doesn't seem to suffice, but know we have a deeper gratitude for others than we have ever experienced.

Pizza! Redwood Estates is an absolutely wonderful community that we fell in love with in 2010 when we first visited the redwood canopied cabin home which we purchased 6 weeks later. We are grateful for the Pizza fundraiser hosted at Nonno's Pizza by our amazing neighbors Anj, Carolina, and Georgia and readily agreed upon by owner, Ralph. The ladies so beautifully orchestrated a wonderful, successful fundraiser attended by members of the community, preschool classmates, my work clients, my co-workers, and friends. We are so grateful to all whom attended and helped raise an astounding $1000. We will use the funds to purchase a much needed used jacuzzi with a lounger with jets for pain control and quality of life for myself. We look forward to lounging under the starry nights, reflecting on the amazing people that made this event possible. Thank you, thank you thank you.

Perfection. The summary of Christmas 2013 for our family. This was the first Christmas we have ever celebrated in Northern California. It's also the first Christmas in our home, just the 4 of us. No long road trips crammed into a short 3 days. It was amazing from the start of the holidays. We had a  preschool family generously come and transform our home what would appear in a HallMark Christmas catalog. The family, along with their kids, decorated from wall to wall. They also had lights put up on our house and in the interior of the house cleaned. It was joyous for all for us to wake up to the Christmas spirit amongst two weeks of bad news. Incredibly grateful for the service of their loving family. Spending the Christmas holiday for for the first time meant we got to wake up Christmas morning and watch the amazement in the kids eyes. Pure joy and bliss. Our happy place. 

My parents and brother stayed for the week in the trailor on our lot and joined us after the initial Santa wrapping on Christmas morning. We were also thrilled to have Alli, Spencer, Linda, Warren, Rebecca, Corey, and Cooper rent a beautiful home on the beach in Santa Cruz. We spent time at the beach, rode the Santa Cruz lights train, ate at favorite restaurants, made gingerbread houses, decorated Christmas cookies, sat under the canopy of redwood trees sharing stories, ate a wonderful Christmas meal at their beach house, filmed a legacy video, ate Its Its (Nor Cal original delicious icecream sandwich), and enjoyed a family game of Myrtle the Turtle (our own kids version of an adult game- we can credit Noah for the creation of the new titled game!). Our adventures continues through the weekend before they head back to LA and San Diego on Friday and Saturday. It was a perfect Christmas and being able to enjoy the company of family without pain, much puking, and pills was a prayer answered. We're grateful and we know this Christmas will forever have a special place in all of our hearts.

Prayer...we had the opportunity to film a legacy video thank to my talented and thoughtful brother-in law, Spencer. The legacy video will serve as a way to tell others about my journey and hopefully touch the lives of others and give them strength through struggles. One of the questions that stood out in my mind was how I get through this type of devastating diagnosis. I attribute my strength to the power of prayer- my own prayers, our family prayers, and your prayers. I am reminded of the lyrics of a favorite hymn titled"I need Thee Every Hour." One of the lines of the songs says, "I need Thee every hour, in joy or pain; Come quickly and abide, or life is in vain." It's true that through good and bad, the power of prayer is amazing and I'm so grateful for strong, firm spiritual beliefs. They bring my comfort and I know blessings have resulted from the prayers uplifted by so many. Our sincere appreciation.

Pictures... we also had the opportunity to take several pictures this weekend. We will continue to reflect upon these photos to get us through the tough times of the cancer journey. I will upload more pictures to share with all of you. The pictures represent laughter, joy, and our unique bond. One of my favorite pictures came in the form of a Christmas gift from my sister Alli.  She framed a picture from my sister, Alli Woolcott and Spencer Woolcott's wedding. This was less than a week before my cancer symptoms began and less than a month before I received the life changing cancer diagnosis. Healthy lifestyle-'active runner, soccer player, mommy to two young kiddos, breadwinner, wife, healthy eater, no history of cancer in our very large family, and strong in our faith. The picture of a rare stage 4 neuroendocrine cancer we all imagined- not! 

Poster... I would make this wedding photo of my sister and I into a cancer poster to educate others that cancer does not discriminate and that we all need to appreciate every second, every memory, and spend less time sweating the small stuff. Let go of negative energy, forgive others, and live to love and serve others as people have so graciously done for us. Thank you Alli for this happy picture ,pass on, share, and let's all start off 2014 with a renewed sense of peace.

Peace... my wish for you in 2014.
With all my love.

I love you dear family, friends, and community.

Amy.. RU Amy STRONG!



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12/10/2013
by Sarah Nash & Erin Nash Fairfax
Good morning! Wanted to make sure that you all received the invitation to Amy's fundrasising lunch on Sunday December 15th at Nonno's @ 2pm. Please share with family and friends.  Let's show Amy and her family our love and support in this difficult time. Thank you! 

December 15th @ 2pm 

Location: 21433 Broadway Redwood Estates, CA 95033

Nonno's Italian Cafe web page: http://www.nonnositalian.com/

Nonno's contact info: (408) 353-5633 or email nonnos@verizon.net 


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12/06/2013
by Sarah Nash & Erin Nash Fairfax
Clinical trials update: Amy traveled to LA last week to interview for a trial there and will be going to Texas in January. She will have a special PET scan soon at UCSF and if any procedures are done possibly another biopsy to help determine if she is a candidate for others. 
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12/06/2013
by Sarah Nash & Erin Nash Fairfax

Dec 5, 2013 11:45 PM

<img class="photo" src="http://www.caringbridge.org/assets/ugc/4t/4h/c/52a1807ca589b4882642ae5c.jpg" alt="Photo">So much to say tonight and I find the closing song We Belong Together to Toy Story 3 repeatedly coming to mind:

We Belong Together
When we're together,
Grey skies are clear, oh.
And I'll share them, till where I'm less depressed.
And it's sincerely, from the bottom of my heart,
I just can't take it when we're apart. 

We belong together,
We belong together.
Yes, we do,
You'll be mine, forever.

We belong together,
We belong together.
Oh, it's true,
It's gonna stay this way, forever,
Me and you. 

If I could really talk to you,
If I could find a way.
I'm not shy, 
There's a whole lot I wanna say,
Oh of course there is!

Talk about friendship, and loyalty.
Talk about how much you mean to me.
And I'll promise, to always be by your side,
Whenever you need me. 

The day I met you,
Was the luckiest day of my life.
And I bet you feel the same.
Least I hope you do.
So don't forget, 
If the future should take you away,
You know you'll aways be, part of me. 

We belong together,
We belong together.
Wait and see.
Gonna be this way, forever.

We belong together,
We belong together.
Honestly,
We'll go on this way, forever,
Me and you.
You and me...

Okay so I'll be honest, in the last two weeks I've had to be transported by ambulance, had a gtube discussion, experienced the worst stomach and throat pain in my life, and seriously questioned whether I'd make it through the day. Pendulum hit the most undesirable side of things, our low. The kids sensed the intensity of it all. Noah so genuinely expressed his frustration, "Mommy I"m tired of you being sick, you've been sick for 100 months." After hearing Mommy dry heave and cringe in pain for two weeks, it felt like 100 months to me too.  

But the upside of the pendulum is that inevitabley through inertia and gravity it will swing to the other extreme. Today, I"m so thrilled to share that we had a day of bliss and a taste of normalcy. Through this cancer journey we learned to cherish these moments, whether it's seconds, minutes, hours, or if we're really lucky an entire day. We were so blessed today to have a taste of what 'used to be'- a playful Mommy, driving kids to preschool, running, visiting neighbors, dancing, and just being 'Mom.' What an amazing, hard working, and fun day it was to just have the chance of being Mom again. The kids were so thrilled to have Mommy back. 

As our nightly routine we all snuggle in bed together and share our favorite parts of the day. Ashlyn, my amazingly intuitive 3 year old, didn't offer her typical responses which usually include highlights such as going to ballet class, a park, or preschool. Today was very different. Okay quick break to wipe the tears. Phew. Ashlyn so proudly and lovingly said, "my favorite part of the day was Mommy feeling better." Completely non-provoked or prompted, she was so thankful to have the Mommy she knows back today.The simplest things, having Mommy back. I hope to give the kids many days of Mommy feeling better... after all...

We Belong Together.

Thanks for making the gray skies clear, I'm the luckiest Mom in the world to have you Noah and Ashlyn. Thanks for a wonderful day, I miss you guys so much when we're apart.

With the deepest love, gratitude, hope for our future, and the biggest fighting spirit in me.
I love you.
Mommy

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11/20/2013
by Sarah Nash & Erin Nash Fairfax

Nov 19, 2013 10:31 PM

<img class="photo" src="http://www.caringbridge.org/assets/ugc/4t/4h/c/528c5e67cb16b4b36afdd418.jpg" alt="Photo">Amy completed radiation treatment number 7 of 10 to her neck and number 6 of 10 to her stomach. She has been enduring these claustrophobic and anxiety provoking treatments with the help of a stuffed animal picked out by Ashlyn each day. After being placed on the table, restrained and mask placed over her face, she holds on to one of Ashlyn's toys during the treatment...It definitely helps to use imagery and thoughts of Ashlyn and Noah to stay calm! Radiation comes with its own side effects, which Amy is beginning to experience. Her throat is extremely sore and she describes eating as being like swallowing a rock with razorblades attached! Not a nice thought. So due to losing a bit more weight despite forcing herself to eat, today she got a little extra hydration after radiation. Also, she has a new "magic mouthwash" or "GI cocktail" to help with the pain... a little bit of numbing medication (viscous lidocaine) mixed with maalox makes eating a bit easier. She hates the sedating effects of narcotic pain meds so is really trying to stay away from them. But she needs to eat, so if mom has her way it will be pain meds, gi cocktails and high calorie milkshakes on the menu!! Additionally, Amy's radiation oncologist changed the treatment so hopefully some of the effects on her esophagus will be lessened as treatment progresses. However, these treatments are tough on the body and she has been advised to take the pain medicine so she can eat. We are hoping she will be well enough to proceed with her chemo next week, but that will be decided later in the week.  
Amy had another great visit with Dr. Bergsland after her radiation therapy. She is an amazing, compassionate, dedicated provider that we are so fortunate to have guiding Amy's treatment. All questions are answered and guidance always provided in a respectful and collaborative manner. Amy requested that an octreoscan be ordered so that her results could be reviewed by an expert in Israel. After Dr. Bergsland provided her opinions, she ordered the scan as Amy requested. As we understand, we may not gain much, if any, useful information from this special scan. But, we are counting on the slim chance that our connection at Hadassa University in Israel will be able to use the results to provide guidance regarding any other treatments not available in the US. We also discussed the clinical trials that Dr. Bergsland thought might benefit Amy. We already have 2 appointments set up, have already had one consultation at UCSF and have appointments at UC Davis yet to be scheduled. Dr. Bergsland continues to be amazed by Amy's physical and emotional strength! The visit ended with many words of gratitude offered to the doctor who in turn gave Amy a big hug!!! 
All these appointments are creating quite a tight calendar for Amy!! So, all off days are spent with the kids trying to savor the moments when Amy feels good. Last week, although not Amy's best physically, was made more joyful due to some unexpected acts of kindness. Amy and family were able to stay at the Hilton in Union square due to a family connection securing reasonable room rates and the generosity of a church member. A little mini vacation with radiation sprinkled in the middle is what every cancer patient dreams of (really???). But truly, this was just the beginning...San Francisco has the most generous people we have ever met. The Hilton restaurant staff were beyond belief in their acts of kindness. Amy was surprised by a fruit basket after one exhausting day of radiation and other medical appointments. Breakfast vouchers for the last day at the hotel allowed us to end our mini vacation satiated after a wonderful meal! But just as we were about to check out two gift baskets arrived, one for Ashlyn and one for Noah. These, too, were from the restaurant staff! So, of course, more hugs and words of encouragement were exchanged during a time when this family is sooo in need!!! There are generous people everywhere I am sure.  The Hilton does not have the monopoly on kind staff, as UCSF has an abundance of kind and caring staff. From the clerks to the valet staff, to the genetics and radiology staff, Amy's experiences to date are to be applauded. A big wow is due, as they did not hold back in their efforts to make Amy feel better when she was experiencing some of the nastier side effects of chemo on Thursday. 
Hot ginger tea and a box of tea for home was just what Amy needed when her tummy was not cooperating after a bumpy bus ride from the Hilton. Dinner at the yacht club with a view of the Golden Gate due to the generosity of the Harrington's. Wow, what a week! Lastly, prior to leaving SF for home, Amy, Paul and the kids were able to attend the Make a Wish special event for the "Bat Kid". Myles who has suffered from leukemia for much of his young life. Amy wanted to show support for a fellow cancer patient who is trying to stay strong and fight this nasty disease! A great, memorable way to end their stay in SF! It was truly amazing to see a city open its hearts to a child who needs some happy memories to replace the negative cancer memories.  
The weekend was pleasantly busy with family visitors from So Cal. Sister Alli and brother in law Spencer flew up to spend a quick few days with Amy and her family. The kids sure love their Auntie Alli and Uncle Spencer!! Paul's parents also came to spend a few days. The kids sure like their Grandma and Grandpa 2! Grandma Nash is a bit jealous, but their attentions allowed Grandma and Grandpa Nash to have a break from caring for the little ones. A trip to the Monterey Aquarium on Saturday was a special treat and Amy was a trooper on this very long day. Alli, Spencer, Grandma 2 and Grandma Nash were exhausted by the time we finally headed home after dusk!! A family dinner at a favorite barbecue restaurant with both sets of grandparents was a nice end to a very busy weekend! Thank you Grandma and Grandpa 2!! 
So life with cancer is a constant roller coaster. Each day we hope that Amy will feel better or at least we hope to control some of the negative effects of her treatment. Her kids are doing amazingly well for their young age. Little Ashlyn knows when mommy is sick (nausea) and runs to get grandma to help! Such sweetness! And recently Noah wall papered Amy's bedroom with pictures of him and mommy holding hands. This was on a day that Amy was in bed most of the day. Kids provide such sweet, innocent and tender moments. Amy's love for her husband and children keep her strong! Eternal faith, love, and hope! Amy STRONG!! 
Please KEEP sending positive thoughts and prayers for Amy 

-Sarah, Amy's mom 


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11/08/2013
by Sarah Nash & Erin Nash Fairfax

Today Amy was admitted to UCSF to start radiation.  This past week has been rough. Betweendoctors appointments, not feeling well and dealing with insurance Amy has hadher plate full. This week she has had lots of dry heaving and pain.  Eating is a chore but she has figured outthat pureed food is less painful. Yesterday our dad took Amy to a day of doctors appointments at UCSFwhile our mom went to a job interview and Paul took care of the kiddos.  Amy has an enlarged lymph node in her neck thathas been causing her pain. Yesterday she was having trouble bending her neck,swallowing and even feeling uncomfortable breathing.  The difficult thing is trying to determinewhat it is all from….possible allergy to pain medications, the lymph node inher neck or some other reason.  Theradiation oncologist wanted to admit her last night but there were no hospitalbeds available and sitting in the ER didn’t sound like fun so they headed home.This allowed for time with Paul and kids. This morning my mom and Amy headed toUCSF with a stack of drawings from Noah to decorate her wall. Noah drewpictures of he and his mom walking Koda Bear. Amy will be admitted overnightfor observation as sometimes the megadose of radiation can cause swelling.  They may keep her through the weekend for asecond round on Saturday.  Then the planis to do more radiation next week.  Weare praying this gives her more comfort. The next step is to get accepted into a clinical trial. We think themost promising one is at a private center in LA at the Angeles Clinic andResearch Institute.  This was byrecommendation of Dr. Bergsland. Concerning the current treatment plan Amy has had input from expertsaround the world for example…. Mayo, MD Anderson, Germany, Israel, UC Davis,Stanford and UCSF. All seem to be very confident in Dr. Bergsland and Dr. Cabebeas experts in their field. 

 Looking forward to better days, praying for comfort and strength to get Amy home quick to her family. 

 

We also want to thank everyone for the continued support andinspirations.  A few examples from thispast week….

 

Radford soccer players sent a photo of RU Amy Strong withpermanent marker written on their wrists. In the mail this week Amy got a cutezebra blanket and infinity bracelet.  Shehas also received many cards this week that are being sent in sets of “8.” Herlucky number.

 

The youcaring fundraiser site is up to over $10,000 in just overa week! I am so amazed at the continued generosity.  We plan to start using the funds to cover hercare when she goes for clinical trials.  Sincethere is no known cure for NETs clinical trials are the only option. Chemo andRadiation will keep the tumors at bay but we want our miracle!  The plan is to travel to UC Davis and LAsoon.  There are also some special teststhat are not covered by insurance that some of the specialists have requested,one being a PET scan showing that certain radiopeptides show a high uptake(octreoscan or Ga-68).  

 Besides $$ some have asked what else the family could use and about the holidays….I will plan to talk to my sister and my mom soon.  Here are my thoughts for now….regarding Christmas with all the Aunts & Uncles & Grandparents the kids should beset.  Right now the kids are fine withclothes but in the spring I suspect they may need assistance. 

My parents have been living in a trailer next to the house so generously lent to them since June by my moms friend Carolyn who lives locally. Now they are in the market to purchase their own trailer, probably in the next two to three weeks.  My dad is thinking of spending around $20,000. He wants a 24-30ft with a large bed at one end, possibly bunk beds at the other and a full bathroom.  My mom and dad would continue to stay in this until they decide if they want to permanently relocate and bunkbeds would give the option for other visitors to have somewhere to stay. If anyone has any thoughts on finding a used one, knows of a dealer locally we would be interested in assistance.  

 Dreaming big…..Paul did a wonderful remodel on their place butas many of you are aware their house is only about 700 square feet and waspurchased knowing their roof would need to be fixed soon. They applied for agrant and were denied.  If anyone has anyconnections to help get their home reroofed on a budget or through a grant orTV show let us know. Noah and Ashlyn also share a teeny tiny room and one daythey had planned to expand towards the back of the house in order to give themtheir own separate spaces.  Obviously nota priority but I am sure Amy would love to see their home renovations complete. 

Again thank you for everything. 

Much love! Team Amy Strong.

-Erin 

www.caringbridge.org/visit/AmyTouchet

teamamystrong@gmail.com


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11/02/2013
by Sarah Nash & Erin Nash Fairfax
Our Aunt Rebecca is running the NYC marathon tomorrow, this is what she had to say....
 
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dear friends and family,

i cannot believe it, but the marathon is just a few hours away.  wow, the past five months have gone by fast, and so much has happened.

thank you so much for all your love and support, both with your generous donations, and your uplifting words of encouragement.  i'm happy to announce that i raised over $4,500.00 to help find a cure for cancer! 

when i started this journey in honor of my beloved toby, my father, and numerous friends i have lost to cancer, i had no idea how it would change my life, nor the meaning that it would suddenly take on.

the discovery of amy's cancer has left my family heartbroken, and for me personally, a feeling of utter helplessness.  there is nothing worse than the inability to help someone you love.  

my goal to run the marathon has helped me channel that pain, and has given me some sense of purpose in a terrifying time.

it has also helped remind me that we are all still very much alive, and that we cannot take this life for granted.  every day is special, and at the ripe age of forty-something, it is never too late to take on a challenge, do something you have always dreamed of doing, and become the person you have always wanted to be.

so, in closing, it may sound cliche', but i thank you from the bottom of my heart.  with tears in my eyes, and chills up my spine, i will run tomorrow, feeling your love.

and hoping that someday soon we will find a cure for this horrible disease, so that families can stop going through the pain that cancer brings.

with love and gratitude,

rebecca

amy strong!  amy strong!  amy strong!

ps if you would like to follow me while i run, you can download this app ~https://itunes.apple.com/us/app/ing-nyc-marathon/id727109676?mt=8

 

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10/31/2013
by Sarah Nash & Erin Nash Fairfax

The Touchets are having a rough week.  Just a week and a half ago things were looking up! Amy’s PET scan showed the largest tumor down 50% and they were living on a high after the SF Nike Women’s marathon 4.2 and all the support shown by the RU Strong Campaign.

 

Things have drastically changed and the family has had to dig deep to find strength and positivity. 

 

Starting last weekend Amy started with nausea and pain again.  She also noted a large lymph node in her neck.  After some testing this week and several doctors appointments she was informed of some bad news….. the tumor in the stomach and surrounding lymph nodes have all grown and are back to a similar or larger size than in July. Additionally, the cancer was confirmed to be in lymph nodes in her neck. This news has been extremely upsetting. Despite the news Amy plans to cling onto her faith, keep fighting, stay strong, weep, and seriously fundraise!

 

We realize now time is of the essence and other options we were hoping we wouldn’t have to think about for a while must be explored.  Before we were fundraising for bills and basics and were considering a new roof for their home but even that is being put on the back burner. A medical treatment fund is PRIORITY.  Thus, we have created a youcaring.com fundraising campaign.  In two days with generous support we have raised $2000 towards an initial goal of $20,000. Amazing!

 

On that note…Keep spreading the word. Any thoughts you have to get her story out there or fundraise and tap the masses let us know.  We have looked into the popular websites like gofundme etc. but they all take a percentage and were a bit discouraged by that…but I must say we are ready, willing and open to suggestions, maybe we should do them all! Currently we have set up a caringbridge site, youcaring fundraising campaign, we have been sending stuff to the Ellen Show, she has been featured on SFs KPIX and on Roanoke, VA news via the RU Strong Campaign.  Other friends have shared her story on Facebook and with various connections in the soccer world.  We appreciate everything. 

 

Here is the link again for youcaring:

 

https://www.youcaring.com/medical-fundraiser/amy-strong-net-cancer-treatment-fund/100832

 

On the medical side we believe networking will find us our miracle.  So again, we are open to suggestions and appreciate all the networking that has already been done, articles sent and clinical trials suggested. 

 

Current Treatment plan: The basic plan is to continue chemo, although change up the medication regimen, start radiation for the neck lymph nodes and explore clinical trials. 

 

The type of cancer Amy has is High Grade Neuroendocrine Gastric Carcinoma, poorly differentiated. It is stage 4 or Advanced (in other words it has lymph node involvement but not in any other organs). You will see online information about NET that are slow growing or secrete substances…Amy’s is not this kind.  It is fast growing and non-secretory. 

 

It was suggested that Phase II and above Clincal trials be looked at.  However, we are open to anything, conventional & not, anywhere, US and abroad. We know advances in NET treatment are on the horizon and we just need to find the right match to get our miracle. 

 

The past few days we have been working hard to compile Amy’s results and summarize her illness.  A cover letter has been drafted and results scanned. Options are being explored at MD Anderson in Houston Texas and all the way to Israel and Germany.

 

So on we go and forward we charge.  We are blessed to have so many supporters.

 

Happy Haunting this evening! We will be thinking of Amy every time we see a Zebra costume and little super heros.

 

To inifinity AND BEYOND.

Inifinite strength, infinite love.

Team Amy Strong!

 

Erin Nash-Fairfax

(Amy big sis)

 


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