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A Happy, Healthy Childhood for Micro-Preemies Wade and Lexus

$310raised of $5,000 goal
6%

Organizer: Holly Brady Beneficiary: Wade and Lexus Brady

Wade and Lexus Brady were born August 14, 2011 at a gestational age of 22 weeks and 5 days. They are two surviving triplets that were given a 0% chance of living upon birth; their sister, Addison...

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Wade and Lexus Brady were born August 14, 2011 at a gestational age of 22 weeks and 5 days. They are two surviving triplets that were given a 0% chance of living upon birth; their sister, Addison Elsie Brady was reunited with God on July 9, 2011 due to severe complications with the pregnancy. Their father, Mark Brady (whose parents Doug Brady and Kim Waterman still live in the Northern Iowa region of Hampton) was in the NICU when he was born after suffering a severe brain bleed that caused his disability, cerebral palsey. Their mother, Holly Brady is disabled and has many health problems; she was given less than a 2% chance of ever getting pregnant. On top of that, she was given less than a 0.1% chance of ever having multiples. Miraculously, her first pregnancy ever was with triplets! Due to her previous health problems and then the strain of a high order multiple pregnancy, there were many complications and trials for Holly and all three babies. Holly was hospitalized at 10 weeks into the pregnancy for a subchorionic hematoma, but all three babies clung onto life. At 11 and a half weeks, Holly underwent an emergency surgery to remove a cyst that was twisting her right ovary and cutting off its blood supply (a torsion.) At 17 weeks, she was hospitalized for an incompetent cervix with protruding membranes. At 17 and half weeks, Addison’s sac ruptured, and she bravely clung to life for another day and a half before prematurely delivering. Doctors explained that attempting to continue the pregnancy for the other two babies would eventually result in a septic infection for Holly that could easily take her life as well as the babies’. After much prayer the decision was made to try and save the babies despite any risks to Holly herself. After that decision was made, it was a long 5 weeks on strict hospital bed rest in the trendelenburg position as well as surgery for a rescue cerclage to keep Wade and Lexus from delivering early. At 22 weeks and 5 days, only two days away from receiving steroid shots to improve Wade and Lexus’ lung development, chorioamnionitis (an infection of the babies’ sac of waters) sent Holly into an emergency c-section. She did indeed end up with a septic infection caused by the chorioamnio infection and was given slim chances of surviving the surgery herself let alone having both of her remaining babies survive. Even though the doctors expected the babies to be born under a pound, both Wade and Lexus not only came out over a pound but trying to breathe on their own! Wade was born weighing 1 pound 2 ounces and Lexus 1 pound 1 ounce. They persevered through an exceptionally difficult pregnancy and through an even tougher beginning to life. Wade underwent an emergency surgery to remove part of his small intestine after a Penrose drain failed at only one month old due to necrotizing enterocolitis. He jumped from 1 pound 5 ounces to over 3 pounds from fluid retention, and his heart started to fail from the pressure. None of his medical staff thought he would live through the surgery let alone bounce back so quickly. He had an ostomy bag for over six weeks before having surgery again to reconnect his intestines. Lexus had heart surgery (a PDA ligation) and suffered a severe case of pneumonia at one month old and was not expected to live through the night. After an intense night of full respiratory support, she made a miraculous recovery. She has had over 10 pneumonia and other respiratory infections at only 8 months old; she continues to fight through each infection. Wade has had pneumonia three times, and each time he battles through it to a full recovery. They both had laser eye surgery for ROP and now have normal vision. Both Wade and Lexus have had surgery to repair inguinal hernias, and Lexus just recently had a surgery for a tracheotomy to ventilate her lungs better, and a gastrostomy feeding tube and a nissen fundoplication for chronic GERD and vomiting. They both have osteopenia of prematurity, and they both have severe bronchopulmonary dysplasia (chronic lung disease.) Lexus also has pulmonary hypertension, but despite all of their medical frailties, they have truly defied all modern medical science in that both have miraculously escaped any brain damage. It is incredibly common for premature infants to suffer brain bleeds that can cause serious disabilities such as cerebral palsy; the younger the gestation an infant is born at, the greater the risk for brain bleeds. Wade and Lexus emerged unscathed as far as brain bleeds go, and for micro-preemies born as young as 22 weeks gestation, that truly is a shocking miracle! In fact, their father, Mark Brady, suffered a brain bleed as an infant that caused him to develop cerebral palsy. Wade and Lexus are fighters just like their parents. Despite all of the challenges Wade and Lexus have faced, they have persevered and remained alive. Time and time again, specialist doctors and nurses have all said that they were shocked and surprised at how Wade and Lexus keep defying medical science. They truly are the very definition of miracles, and after the emotional rollercoaster that the Brady’s went through, they have survived as a strongly bonded family. Now, to keep Wade and Lexus living a fruitful and happy life, we need help providing the best possible environment for them to live in in order maintain their delicate health. Please help Wade and Lexus remain infection free and healthy so that they can continue growing and being happy little miracles! May their story of success through trials and tribulation serve as inspiration and hope to others who are in similar straits.
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Updates

Updates

10/17/2012
by Holly Brady
Finally after 14 months (10 months old corrected), Lexus is home!! She was officially discharged on Monday October 15th! Thank you to all those who made getting our home generator possible; you know who you are! Lexi couldn't be here without it. Sadly now, Wade was readmitted to Blank Children's Hospital due to gastrointestinal issues. He went back in the day after she got out. :-( He should be returning home shortly though.

Lexus and Wade continue to have high medical needs though they have both made leaps and strides in their health and development and continue to remain fighters. Lexus still breathes through her tracheostomy though it is now capped with an HME valve. She is on 1/4L oxygen 24/7. She has a vomiting problem and therefore has a very strict feeding regimen. She eats special formula and then special blenderized feedings that we make here at home for her. She eats through her g/j tube (a tube that goes directly to her stomach and one that goes directly to her intestines). She can't sit up on her own yet, but can roll over.

Wade cannot sit up on his own yet either though he can do a baby "push up"! He also eats special formula through his g tube. They finally got to meet and love influencing each other. We are grateful and glad we are finally a complete family, though Wade and Lexus' high medical needs don't allow us to be whole. Medicaid only pays for a certain amount of supplies the amount of which of course Lexus exceeds. Every bit of help is appreciated as we keep struggling through life's hoops so that we can actually live...





05/14/2012
by Holly Brady



05/11/2012
by Holly Brady
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Wade and Lexus are doing great all things considering. Wade has a failure to thrive diagnosis meaning he cannot grow sufficiently on his own. He had blood work today where he was poked three different times, but he acted like a trooper! Wade smiles at everyone and everything; he is a very happy, joyous little boy. Nothing deters him. Doctors suspect that his lack of proper weight gain (about 1 ounce a week or even loosing an ounce a week) may be due to the small bowel resection he had done at only one month old due to necrotizing enterocolitis. He may not have sufficient amounts of small intestine left to effectively absorb enough nutrients into his body from what he eats. Some infants can actually die from this syndrome as it can affect their growth poorly. Wade however remains in high spirits and is constantly moving and grooving with that toothless grin on his face.

Lexus hit a small step backwards last week as she either has an infection form the bacteria in her trach tube, or she couldn't handle the weaning from her respiratory support settings and responded poorly by backsliding to higher vent settings. She is now still on CPAP through the trach but on full support settings other than her oxygen (FIO2 level.) She is only at about 36% FIO2 which is fantastic! The hope is that they can get her over this infection or slump in vent weaning process and get her home this summer either on straight oxygen through her trach or on a home CPAP ventilator for her trach. Either way, we are hoping that she can be released home to us this summer!

This brings me to the point of what home Lexus can be released unto. Currently, my husband, Mark, Wade, and I are currently living in one room in my parents’ home. It is a 10 by 14 foot room that barely accommodated Mark, myself, and Wade with all of his equipment and monitors. There would be no room for Lexus were we currently are not to mention our current home could not handle the electrical needs that Lexus and her home health equipment would need in addition to Wade's. We are currently attempting to rehab a pole barn building into a home for Wade, Lexus, Mark, and myself. Polk County has bent over backwards trying to help us in any way that they can, but we are still in need of assistance. Most of the construction work done in the pole barn so far as been from my two disabled parents, and my disabled husband and myself. Over $32,000 has been donated so far, but we still need $25,000+ to complete the project and get Lexus home with the equipment she needs to be as healthy as possible and to simply survive at home.

The struggle our little family goes through is an extensive, complicated one that involves three generations of disabled, strong-hearted people who will do whatever is necessary to ensure the best possible future for two micro-preemies, Wade and Lexus Brady, who deserve the best possible chance at life and a happy one at that! Wade and Lexus need supporters and sponsors; please feel free to sponsor them through this website via PayPal or locally at any Veridian Credit Union: Just make out a check or donate a cash amount to Veridian Credit Union in Wade and Lexus' behalf. We think you for all of your help and support. Our community is worth saving every citizen, even the tiniest ones! Thank you and God Bless!

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10/17/2012
by Holly Brady
Finally after 14 months (10 months old corrected), Lexus is home!!  She was officially discharged on Monday October 15th!  Thank you to all those who made getting our home generator possible; you know who you are!  Lexi couldn't be here without it.  Sadly now, Wade was readmitted to Blank Children's Hospital due to gastrointestinal issues.  He went back in the day after she got out.  :-(  He should be returning home shortly though.  

Lexus and Wade continue to have high medical needs though they have both made leaps and strides in their health and development and continue to remain fighters.  Lexus still breathes through her tracheostomy though it is now capped with an HME valve.  She is on 1/4L oxygen 24/7.  She has a vomiting problem and therefore has a very strict feeding regimen.  She eats special formula and then special blenderized feedings that we make here at home for her.  She eats through her g/j tube (a tube that goes directly to her stomach and one that goes directly to her intestines). She can't sit up on her own yet, but can roll over.

Wade cannot sit up on his own yet either though he can do a baby "push up"!  He also eats special formula through his g tube.  They finally got to meet and love influencing each other.   We are grateful and glad we are finally a complete family, though Wade and Lexus' high medical needs don't allow us to be whole.  Medicaid only pays for a certain amount of supplies the amount of which of course Lexus exceeds. Every bit of help is appreciated as we keep struggling through life's hoops so that we can actually live...



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