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"running with my WHOLE heart" for Caleb

$11,908raised of $10,000 goal
119%

Organizer: Nicole Serraiocco Beneficiary: Caleb Daniel Benefit Fund

Please help support the Daniel Family. Caleb was born with a half of a heart (HLHS). He is 6 months old and has already undergone two major heart surgeries and many other procedures.

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Fundraiser Details

I started running almost 2 years ago to get in shape after baby number 3.  I've come to love running, but certainly not without some motivation and encouragement from friends along the way.  Ashley Daniel, both a neighbor and friend of mine, and I became very close during our long runs together.  Ashley and her husband Zack decided they were going to run the Chicago Rock and Roll Half Marathon for their anniversary.  I decided I would run in Chicago as well that year.  As running goes, the race was challenging, requiring mental fortitude and perseverance, but very rewarding after weeks of disciplined training.  For me the rest is history.  I've completed several races since then.  Running is a part of my life--an outlet, a mental and physical challenge, an opportunity to push myself further.  For Ashley and Zack, things changed… Ashley became pregnant with her 5th little blessing.   At 20 weeks they learned that something was very wrong with their sweet little baby's heart.  He had Hydroplastic Left Heart Syndrome (HLHS) aka half of a heart.  Caleb Daniel was born April 10, 2013.  He has since had 2 major heart surgeries and many other complex procedures.  Caleb has spent most of his life at Vanderbilt Children's Hospital.  Ever since learning about baby Caleb's condition, I have been brought to my knees--grateful for what I have, and touched by the faith and courage of the Daniel family in light of the challenges that lie ahead.  Caleb's family has shown the world what courage, prayer, and faith can do.   

As a sign of support for the Daniel family, I've decided to train for and run my first full marathon.  To honor Caleb and his strength and fight ahead, I am asking for any sized donations to be made towards Caleb's benefit fund.  Every dollar raised will go towards Caleb's ongoing medical expenses. You can follow Caleb's story through Ashley's blog: http://zackandashleydaniel.blogspot.com.Thank you so much for your support.

If you would prefer to make a donation by check:
Caleb Daniel Benefit Fund
713 Braemere Drive
Franklin, TN
37064

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Updates

Updates

11/19/2013
by Nicole Serraiocco
Sorry that it's been so long since an update.. alot has happened.  This past Sunday we had our "Day with the Daniels" fundraising event... I have no words to express how awesome and amazing it was.  I love how our community pulls together to help out a friend, neighbor, or even complete stranger.  I feel extremely blessed to have been a part of it.  I've attached a link to a slideshow that is SO worth watching.  http://video214.com/play/Co4nPNltl6C3Ok1W4fHDFw/s/dark 

We were blessed that Caleb and his entire family were able to attend the event.  Caleb is doing well but is struggling a bit with the weather change.  He doesn't know really how to swallow or cough so any drainage he has gags him and causes him much discomfort.  This too shall pass, he's one strong, happy little boy (I've also posted new pictures of him from the event).

Another update... I've been in a boot since last wednesday on my left leg.  I found out friday that I have a stress injury to my tibia which means no running for 2 weeks.  I see this as just a little hiccup in my training for the marathon. Throughout Caleb's surgeries and hospital stays he's had many little "hiccups" to overcome, it's all part of the process.  I WILL run this marathon in 25 days!  This next week will just require me to have patience and faith.  I will spend alot of time at the pool aqua-jogging =).  I'm up for the challenge, I firmly believe that God has a plan and this is just part of the journey.  Please continue to pray for Caleb and the Daniel Family and also please say a little prayer for my leg to heal.  Thank you with my WHOLE heart.

PS.  A HUGE thank you to those who have donated to support me and the fundraising goals for Caleb.  You truly make my heart smile xx

Philippians 4:13 "I can do all things through Him who strengthens me."

~Nicole

You can follow Caleb's story at http://zackandashleydaniel.blogspot.com






11/02/2013
by Nicole Serraiocco
Today, I ran the longest run of my life so far-- 18 miles.  I reflect and think wow I still need to come up with 8.2 more miles on race day and it's a little overwhelming.  But then I think of sweet innocent little Caleb who faces a lifelong marathon.  He has many obstacles to overcome and hopefully only one more major surgery to tackle, but he will be on many lifelong medications and will be limited in some activities that normal children will take for granted. That is when I become confident that I can push myself to run 26.2 miles... for Caleb, for the Daniel family!  Now, I've also decided to push myself one step further- I'm going to try and quality for the Boston Marathon 2015.  I know this is crazy.. but why not push myself? How cool would it be to run for Caleb in Boston- at that time he might be getting ready for his 3rd major surgery.... now that's motivation =)  I feel extremely blessed with supporting friends, family, and running partners.  I firmly believe that God will give me the strength needed to run the race he called me to.  I thank everyone who has taken the time to read this blog and donate for such a wonderful family. Thank you with my WHOLE heart xo

One of my good friends sent me this verse which I remind myself to read whenever I begin to doubt myself
22 "And many times it has thrown him into fire or water to destroy him. But if You can do anything, have compassion on us and help us." 23 Then Jesus said to him, " 'If You can?' Everything is possible to the one who believes." 








10/25/2013
by Nicole Serraiocco
Thank you to all of those you have already so graciously donated and have written such kind and supportive words on this page!  My training is starting to get more difficult as I begin to run new longer distances.  As I think about my 16 mile training run tomorrow, I'm a little nervous but also filled with a feeling I can't even describe- it just feels so good to be running for a purpose, for baby Caleb.  I was able to see him yesterday during his physical therapy and he just melted my heart.  I stared at him and just couldn't believe what a little miracle he is, breathing and smiling with just 1/2 of a heart that's been rerouted to help his body function.. AMAZING.  He has many challenges ahead, at 6 months old, he is working hard to build his neck muscles which are weak due to the many surgeries which resulted in little to no tummy time.  He is also fed through a g-tube and will be hopefully starting speech(feeding) therapy soon because currently he gags at anything put into his mouth other than his pacifier. He has a long road ahead of him.....


Ashley's sweet sister Courtney shared this verse with me... how true it is, definitely something I will remember during my race when things get tough!  Thank you Courtney xo

Hebrews 12:1-2

12 Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles. And let us run with perseverance the race marked out for us, fixing our eyes on Jesus, the pioneer and perfecter of faith. For the joy set before him he endured the cross, scorning its shame, and sat down at the right hand of the throne of God.




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